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What a whirwind!

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Nancy Sarvis Find out more about Nancy Sarvis
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  • #1

    What a whirwind!

    I haven't posted in a few weeks. My mother is about a month into her new knee and is recovering nicely. You guys were right about weeks 2 and 3 being hard for her (and me).In the meantime I've had to see my cariologist here for CHF. I was taking Vioxx. She took me off that and changed my diuretic to Demadex. My swelling has gone down alot but I still have a little cough/congestion but nothing like it was. She also wanted me tested for sleep apnea and that test was positive. I go back on the 18th to be tested for my CPAP. I also was diagnosed last year with secondary pulonary hypertension and hadn't ever seen a pulmonologist.He believes a lot of my symptoms will get better after I get treatment for the sleep apnea. My pulmonary pressures have dropped from 52 to 44 after the myectomy. Hopefully they will continue to drop!
    I've been really short of breath with the CHF. At the pulmonologists office they walked me around a little in the office and my oxygen level dropped to 86 in just a minute or two. They put me on oxygen at night and while walking around. I'm wearing it to clean house and bring in firewood. It has given me a lot more energy. I think just being able to slow down for a while will make a big difference when and if that ever happens.I'm off now to get Mom to the doctor for a follow up on her knee.


    Nancy
    Obstructive HCM, Pacemaker 1999, Septal Myectomy 2002
    Tags: None
  • #2
    Please get a little rest and a little help with your mom... you need to take care of YOU.
    Please be careful with oxygen level talk to your cardiologist about this as well as your pulmonary person.
    Take CARE!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      sleep apnea and Vioxx

      I just read Nancy's story. I was diagnosed with moderate sleep apnea this past August (had a sleep study performed overnight in the hospital). I had been on Vioxx less than 2 months also at the same time. I was fitted for a CPAP and I didn't snore and felt more refreshed in the morning. In early November, I had symptoms of CHF...for the first time in my life. Maybe I'm way off base here, but I find it very interesting and wonder if the Vioxx (which I STILL swear I had fluid build up from that), and maybe the combination of this CPAP..made something go haywire. I am defininately going to mention everything to the HCM specialist who I'll be seeing in Boston next month. I'm not denying that I had CHF, but I think something triggered it....
      \"It is not length of life, but depth of life.\"

      Ralph Waldo Emerson

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      • #4
        Cynthia - I am not sure what ... but I do believe there are triggers and that they may vary greatly between us. Once you find your triggers...you can learn to avoid them.
        Best wishes,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

        • #5
          Thanks Lisa

          Lisa,
          Thank you for keeping me grounded in the basics. Don't you love it when you give good advice and your people take it! I did call the cardiologists office and informed them about the low oxygen level. AND I'm taking this day for myself!
          Obstructive HCM, Pacemaker 1999, Septal Myectomy 2002

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