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HCM Specialist in Albany???

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liona Find out more about liona
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  • HCM Specialist in Albany???

    I have been diagnosed with HCM recently, but not fully evaluated. My cardiologist wanted me to go Manhattan or Boston, but I am much more comfortable going to Albany Medical Center. I called there and set up an appt. with a surgeon, Dr. Zisman in the Heart Institute. I called again to confirm that he actually works specifically on HCM patients, and they affirmed this.

    My cardiologist wants me to go to Boston or Manhattan, but I am uncomfortable with either choice. I guess I will go to Manhattan if I must, but it really seems like a bad idea at every level.

    I spent decades living in NYC and dragging around to all the best Medical Centers, seeking help. Then I moved 85 miles north, to New Paltz, NY.

    Now that NYC is a prime terrorist target, I hardly want to go back there. Also, the baggage from my years of fruitless searching, makes me feel doomed every time I contemplate going to NYC---------

    Have others on this list found adequate care in centers that are not listed in this site??

    In any case, I'm going to keep the appt. in Albany, just to see if they can take care of me there------------

  • #2
    choice

    Dear Liona,

    There are other doctors here and there that Lisa recommends that aren't part of the major centers we talk about most often here. Please call her at 973-983-7429 to ask about yours.

    I don't know anything about the doctor you mention, but that doesn't mean anything.

    However, I do need to point out that just b/c someone does see a lot of HCM -it doesn't mean that we recomend them (eg the NIH).

    So, he could be just find and great, but I would want to check with LIsa to see what she knows about him first.

    take care,

    S

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    • #3
      Liona, call Lisa and find out your options. I think you will learn that you have several to choose from, not in NY city. Learn about each before you make a decision. Many are well qualified to care for HCM that are not connected with the major centers, but when someone has to travel anyway, it makes sense to go to a facility that can offer all options for treatment. If you have someone qualified very near to you, that person can refer you to a speciality center if needed. Lisa will be able to help you with this info. Keep us posted. Linda

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      • #4
        Let me put it this way -
        My father lived in NJ all his life - - and since about 1970 HATED NYC!
        I took him to see Dr. Sherrid last year at St. Lukes - It is on the west side in a very nice area and it is NOT the typical NYC frantic pace - the staff is kind and pleasant and you dont "feel" like your in NYC when there. When we left the city he said "this is really nice, it is not what I thought it would be like"

        RE: terrorists - well all I can say is ...who knows?? BUT if you let "THEM" stop you from getting the health care you need ..."THEY" win and you loose.

        With all due respect to Albany.. they do not see the volume of HCM patients seen in the HCM centers we refer to... you will benefit from the knowledge held in these centers...then you will go home and be followed by your hometown doc YOU DO NOT need to go back to the specialist every few months... normally 1 time per year is fine.

        Think it over... call if you need to chat!
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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