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Another question from Bert! Sorry...


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  • Another question from Bert! Sorry...

    We just got the reults of our son's 24 hour Holter Monitor and it indicated that no cardiac symptoms were recorded. So... Is it good news, bad news, misleading news? Or, false hope, no hope, dissallusioned hope? Need to know from the experts out there.

    Thank again.

  • #2

    Dear Bert,

    One can have HCM and not have any "events" in a day very easily. It is good news in that he didn't have any palpitations or tachycardia --certainly. But yes, it is only a measure of one day but hopefully a typical one.

    Most of us don't have symptoms all the time --it just depends.

    So chalk one up on the good news side!



    • #3
      Thank You Sarah!

      I needed a bit of good news. Although, I'm realistic and not getting my hopes up. One thing we've just discvored is that at Jonathan's school 3 kids, all athletes, were just diagnosed with cardiac abnormalities. 2 of them have myocarditis which is the only time I have heard a "cough" being mentioned and have been cleared for athletic competition (much to my surprise!). The other one apparently has tachycardia and is also playing. How do you tell the difference between myocarditis and HCM. A lot of the symptoms appear to be the same. and the diagnostic procedures are very much the same. I just find it odd that all of a sudden 3 kids out 1400 students in the same school have a cardiac condition.

      Funny the stuff you hear at school budget hearings. Thanks again.


      • #4
        Hi. I am enclosing a link to an article on myocarditis from intellihealth.com. http://www.intelihealth.com/IH/ihtIH...?d=dmtHealthAZ

        This explains that myocarditis is an inflamation of the heart muscle and can be caused by many things. I can't tell you from a medical standpoint whether any of these children should be playing sports, the ones with myocarditis or the one with tachycardia. I can tell you from a parent's view that I would not allow my kids to play if they had either problem.

        However, I have to add that all of my life from about age 10 on I had tachycardia episodes. Some of them were actually life threatening. I've been on meds since then and will continue to be for the rest of my life. My cardiologist always told me that there was no limit on my physical activity. Since I was never terribly athletically inclined I kept away from most activities that made my heart rate rise. I hated the way I felt when I had those episodes.

        That is my two cents worth. I'm sure others will post too.


        PS, Does your son feel all right? I'm glad his holter came out clear. Remember, many HCM patients don't have abnormal EKG's. The echo is the true litmus test.

        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.


        • #5

          I have had numerous holter monitor tests. I am currently preparing for another 48 hour monitor. I have HCM and was obstructed prior to my surgery. I have never had any cardiac issues from the holter tests. But prior to my surgery, I was limited in what I could do (and still am to some extent). Some HCM'ers have arrithmia issues, while others like my self do not (at least not so far). A clear holter test does not rule out HCM, but it still may be positive that arrithmias are not an issue at this time.

          Cleveland Myectomy Crew
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