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  • Quick question

    With an estimated rate of 1 per 500 with HCM, and in looking at the total number of kids involved in high school sports, don't we have a bunch of potential walking timebombs out there?

  • #2
    No argument here. Every now and then one of those bombs goes off

    Cleveland Myectomy Crew
    Member since November 2002

    \"Chance favors the prepared mind!\"


    • #3

      You are so right! Add to that the adolescent "invincibility cloak" and the time bomb becomes more dangerous. Many kids don't think that anything could happen to them and they aren't educated enough to know when something isn't right. Even if they don't feel well they will often not tell their parents because they either don't realize that something is wrong or they think that it's nothing.

      If you read through the archives on this board there are many posts where people either are trying to find out how to actively campaign for better screenings or have arranged to do these. Especially search for posts from Sharon Bates. Her son died young and now she organizes mass screenings at colleges and universities. I think the next one is coming up soon in Phoenix, but I'm not too sure on that. Others are fighting for AED's (automatic external defibrillators) to be put in public places like schools. These devices are wonderful tools even for fans of sporting events.

      I totally agree with you. Sorry my reply got so lengthy. Have a good day.


      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4

        THe HCMA is working to change that and working to get awareness out there. However, everything costs money and the American Heart Association doesn't even know what HCM is, let alone fund us or any other screening or awareness programs.

        If you want to help --make sure your community has automatic external defibrillators (AEDs) in the schools, at parks, in all public places and start or fund screening programs for the high school athletes. Every little bit helps. OR send a check to the HCMA.