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Suggestion About Survey Re Hot and Cold

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kathyn2 Find out more about kathyn2
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  • Suggestion About Survey Re Hot and Cold

    I answered this survey recently but I believe there needed to be a spot on it for 'other' or a place to state some information that wasn't asked for. For instance I have been quite ill for a few months with anemia which has caused havoc with my HOCM. I had to answer the questions with what I feel now with this problem but I hope when it is straightened out I will feel better. The terrible problems I am having are probably caused by anemia WITH the HOCM and not the hocm. I hope that makes some sense altho the basic premise for me is that I feel much worse in the heat than in the cold. But there were several questions where the anemia has made a very negative impact on my disease that would not necessarily be there if I didn't have it but there was no where to state this on the survey. Perhaps my answers shouldn't be taken into account right now.
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