[could I still find out that I have HCMA?]

Author: Jacki (---.kvalley.com)

Date: 03-29-02 16:34


I'm 22 years old. My family carries Hypotrophic cardiomyophathy. My mom had it and so did her father. My little sister who is now 19, got diagnosed with it when she was 14. I got tested when I was 13 (echo) and was told I didn't have it by my mom's heart doctor. Then I got tested again about 1-2 years ago by my sister's cardiologist (EKG) and he said I looked fine. My question is this, could I still show up having it in the next few years? I am thinking of having a baby, and would like to know what my risks are. I have already considered that my child has a 50/50 chance of getting it, but now I'm scared that I may too!! Please give me some help!!

Thanks, Jacki


[Re: could I still find out that I have HCMA?]

Author: Ellen (---.parnj1.netplay.net)

Date: 04-01-02 11:14

Hi Jacki..

If you contact the HCM office at 973-983-7429 I can set up an appointment with you to speak to Lisa Salberg. Also please forward your full name and mailing address to [email protected] and I will send you out an information packet. Thanks...