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dennis Find out more about dennis
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  • coffee

    Hi Just how bad is caffine for HCM patients, Ijust love my black coffee first thing in the morning. dennis

  • #2
    Hi Dennis,

    I don't know if you've experienced palpitations or skipped beats, but I find that when I consume a lot of caffeine (from coffee or sodas) that it causes me to have more of those odd beats. I switched to decaf without any problems. Hope this helps.
    HOCM, Septal Myectomy 10/02 (Mayo Clinic), Medtronic ICD 10/07, TIA 10/07


    • #3
      mostly a no-no

      Dear Dennis,

      If you want to wean yourself off caffiene, the best thing to do is to slowly start cutting your high octane fuel with a little decaf. Go about a week or two at each level (eg 3 parts regular to 1 part decaf) and continue to step down --just like the nicotine patch.

      I think you will find that you are less edgy, irritable and have fewer palpitations once you are down to half or less regular coffee.

      good luck and take care,



      • #4

        Hi Dennis. Caffiene gets my heart going like a set of drums with PVC's, extra beats, skipped beats etc. 4 years ago I was hospitalized with A-fib and my cardiologist ordered me to completely lay off of all caffiene. Being like you (I consider black coffee to be a food group and necessary for life) I was devestated. I now drink only Starbucks House Blend Decaf. While I sacrifice a little on the flavor it is much less noticable than what one might generally buy in the store. Good luck.
        God Squad co-moderator
        Nothing is as gentle as strength and nothing is as strong as gentleness


        • #5
          The Flutters.......

          Just after having my Ablation done on the 21st of Jan. I came out of the hospital and immediately went right back to drinking my "lite" coffee, The PVC's kicked up to the point of being agrivating. After a trip tp my local cardiologist and several test to rule out any thing else, they adjusted my meds and ordered me completely off caffiene. I havent had any "flutters" in over a week and feel much better for it. It wasent so hard to kick the "habit", I was already limiting my caffiene intake before I quit all together. I guess weaning your self off is a good idea. Connie
          The BEST is yet to come !!


          • #6
            caffine causes "normal" people to have PVC's and "fast" heart rates...so take an HCM heart and add caffine and SOME of us have trouble with it.
            I as many know am an admitted Earl Gray Tea addict...This is my one and only vice in the world (ok dark chocolate too but only a little of that).
            I have never had any ill effects from drinking caffine...but as I have said 1000 times we are all a little different.
            So if caffine causes you any additional symptoms you should not have any...like my dad who ate the piece of chocolate cake at Staceys 8th grade graduation dinner at 10pm...I said Dad you eat that and YOU WILL BE in A-fib in no time...he said NO I WONT and ate the cake....7am where were we...in the ER with fast rate A-fib and off to be cardioverted that afternoon.
            There will come a day when caffine gets to me, I am rather sure of that...for now...I am an addict and thats that :P
            I will always be honest with you all...even when I do things maybe I should not...so Sarah..dont bother giving me HE__.
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)


            • #7

              When I was first diagnosed, I dropped caffine totally and moved as much as possible to decaf. I too love Earl Grey tea. There is in fact a decaf version of this tea sold in the stores which, at least to me, taste no different than the original.

              Cleveland Myectomy Crew
              Member since November 2002

              \"Chance favors the prepared mind!\"