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Lisa Salberg Find out more about Lisa Salberg
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  • #76
    Thank you for the information and advice, Jill and gfox. I'm probably fretting over nothing, but it's a difficult thing to take my mind off of.

    I'll be sure to give the UMCC a call on Monday.

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    • #77
      My name is Sarah, I am 38 years old. I am a wife, a mom of five and a missionary in Tanzania. I was just diagnosed this week after fainting in my bathroom in the middle of the night. My mother has HCM and is headed to a transplant (she might be on here somewhere) so I have some understanding of HCM. My journey with look different from what I have seen with my mom but the diagnosis has still come as a complete shock. The doctor here has me on a calcium channel blocker and blood thinner. I will see him again in a month. I am trying to decide if I need to come back to the US for further testing, do we need to move our whole family back... Life-changing decisions. Well, trying to take my time and decide. Anyway, I know how much support my mom has gotten from this forum over the years and decided to join the community. Thanks so much.

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      • #78
        Hi Sarah,
        And welcome! Sorry you're having to cope with this.

        First things first: are you having arrhythmia (in particular, atrial fibrillation or atrial flutter)? Blood thinners make sense for people having those, but not for most others.

        Why don't you arrange for a consult with the HCMA office - email or phone to get it scheduled, and it could be done by phone or Skype. That would probably lead to more useful info than our giving you recommendations, as those would really require lots of information.

        This bulletin board isn't used as much as it used to be - there're a lot more people using the HCMA's Facebook page. You're welcome to use either, but you'd get a lot more response on FB.

        Gordon
        Myectomy on Feb. 5, 2007.

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