If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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Lisa Salberg Find out more about Lisa Salberg
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  • All visitors-- please read this posting

    To all those who visit this message board and share their thoughts, feeling, experiences, fears, accomplishments, hints and lives... I thank you

    You each provide a piece of the puzzle; these pieces may have been hidden from others. The magic of the Internet allows us to communicate in a way never before available in society, and we have come to take it for granted already. Each who shares gives a gift to so many.

    I do ask something of each of you, words are very powerful; use caution in your postings remembering that we are all just a little bit different. If you have had a poor experience with a member of the medical community we ask that you not use names, as they do not have the ability to respond to your concerns in a public forum, in great part to maintain your confidentiality. Posting that violate this rule will be taken off the board (effective 3/16/03).

    A medical adviser does not review this message board formally. Therefore sometimes information can be slightly incorrect and requires confirmation through the HCMA directly or with your physician. By no means does this statement suggest this board is inaccurate, it is simply commonsense to be cautious.

    I have amazing pride in all those who share their feelings with others and those who hope to teach others from their own experiences, most of them have not been pleasant experiences mind you.

    This web site and message board is only the beginning of what the HCMA must do to improve the quality of lives for those with HCM into raise public awareness. So keep talking, keep sharing, and keep learning. In 1996 when the HCMA was but a thought, a hope, a dream it is now a reality - We are not alone, there is help, hope and treatment and most of all there is life with HCM.

    In closing, thank you all for helping make my dream come true.

    Sincerely,

    Lisa Salberg
    President and Founder
    HCMA

    PS Remember to email your names and address to the email at the top of the website to recieve a free information packet on HCM and the HCMA!!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Above message was ammended. Please re-read.

    Thank you.
    Lisa


    July 31, 2003
    An update

    To all readers:
    Take a minute to really pat yourselves on the back...each and every one! This board has been really amazing over the past few weeks. It is a wonderful board because you all share, question and learn. Again I am proud of you all...and make no mistake about it...HCM may rule parts of us..it is our attitudes that make us strong.
    Peace to all!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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