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To all those who visit this message board and share their thoughts, feeling, experiences, fears, accomplishments, hints and lives... I thank you
You each provide a piece of the puzzle; these pieces may have been hidden from others. The magic of the Internet allows us to communicate in a way never before available in society, and we have come to take it for granted already. Each who shares gives a gift to so many.
I do ask something of each of you, words are very powerful; use caution in your postings remembering that we are all just a little bit different. If you have had a poor experience with a member of the medical community we ask that you not use names, as they do not have the ability to respond to your concerns in a public forum, in great part to maintain your confidentiality. Posting that violate this rule will be taken off the board (effective 3/16/03).
A medical adviser does not review this message board formally. Therefore sometimes information can be slightly incorrect and requires confirmation through the HCMA directly or with your physician. By no means does this statement suggest this board is inaccurate, it is simply commonsense to be cautious.
I have amazing pride in all those who share their feelings with others and those who hope to teach others from their own experiences, most of them have not been pleasant experiences mind you.
This web site and message board is only the beginning of what the HCMA must do to improve the quality of lives for those with HCM into raise public awareness. So keep talking, keep sharing, and keep learning. In 1996 when the HCMA was but a thought, a hope, a dream it is now a reality - We are not alone, there is help, hope and treatment and most of all there is life with HCM.
In closing, thank you all for helping make my dream come true.
Sincerely,
Lisa Salberg
President and Founder
HCMA
PS Remember to email your names and address to the email at the top of the website to recieve a free information packet on HCM and the HCMA!!
You each provide a piece of the puzzle; these pieces may have been hidden from others. The magic of the Internet allows us to communicate in a way never before available in society, and we have come to take it for granted already. Each who shares gives a gift to so many.
I do ask something of each of you, words are very powerful; use caution in your postings remembering that we are all just a little bit different. If you have had a poor experience with a member of the medical community we ask that you not use names, as they do not have the ability to respond to your concerns in a public forum, in great part to maintain your confidentiality. Posting that violate this rule will be taken off the board (effective 3/16/03).
A medical adviser does not review this message board formally. Therefore sometimes information can be slightly incorrect and requires confirmation through the HCMA directly or with your physician. By no means does this statement suggest this board is inaccurate, it is simply commonsense to be cautious.
I have amazing pride in all those who share their feelings with others and those who hope to teach others from their own experiences, most of them have not been pleasant experiences mind you.
This web site and message board is only the beginning of what the HCMA must do to improve the quality of lives for those with HCM into raise public awareness. So keep talking, keep sharing, and keep learning. In 1996 when the HCMA was but a thought, a hope, a dream it is now a reality - We are not alone, there is help, hope and treatment and most of all there is life with HCM.
In closing, thank you all for helping make my dream come true.
Sincerely,
Lisa Salberg
President and Founder
HCMA
PS Remember to email your names and address to the email at the top of the website to recieve a free information packet on HCM and the HCMA!!
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