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  • #1

    Genetic Testing

    [Genetic Testing]

    Author: Lucho Monserrate (---.com)

    Date: 03-27-02 13:29

    Can somebody help me on how to go about getting tested.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Genetic Testing]

    Author: sarah beckley (---.dsl.mindspring.com)

    Date: 03-27-02 14:17

    Dear Lucho,

    Your cardiologist should be able to put you in touch with a local doctor who is capable of running the tests (or having them done). If not, please ask the HCMA office for a referral.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Genetic Testing]

    Author: Richard Gilliland (204.60.40.---)

    Date: 04-04-02 08:23

    Genetic Testing is being performed by the National Institues of Health. www.nhlbi.gov/labs/7east

    I am a 40 year male who is being treated for HCM by the NIH. They are currently trending my children ( ages: 8 and 10) for the disease.

    Good luck.

    Rich

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Genetic Testing]

    Author: lisa (208.47.172.---)

    Date: 04-05-02 10:53

    Rich,

    As we spoke about last night...I would be very cautious about following that path.

    Rule One for any HCM patient...YOUR quailty of life comes first...treat yourself...then worry about research.

    I enjoyed our talk and hope your are feeling a better about everything today!!

    Best Wishes,

    Lisa
    NOTE: This is a post from the previous forum message board.
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