If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Mayo denied followup to prev.

Collapse

About the Author

Collapse

Margie Find out more about Margie
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Mayo denied followup to prev.

    Linda,
    I had my surgery in St. Louis, Mo. The surgeon doesn't folow me and
    there are not any hcm drs. here. My cardiologist thinks he is qualified
    to treat me. I'm not sure if my pursuing this without his help will get
    me anywhere. He tells me since I'm doing o.k. he can't justify it.
    Lisa is working on getting some info. to me. She is so wonderful.
    I just don't know if I'm being unreasonable to ask to be seen at a
    specialty center. Thanks for your help. What kind of followup do
    most myectomy patients receive? My surgery was done 8mos. ago.

    Thank You,
    Margie
    P. S. I cannot get logged in to post a reply most of the time. I had to
    go under new topic to send this.

  • #2
    Margie, your followup at this point would be treatment for HCM, and preventing complications down the road. The surgeons do like to know how their patients are doing, they like to know they've been successful and you are feeling better. I thought maybe you had gone to one of the centers for your surgery, which would already make you known to them. I'm glad you're working with Lisa. It never hurts to have a second opinion. At least then you have peace of mind. I would think it would be reassuring to that doctor also. Good luck, Linda

    As for the logging on and technical probs - Tim and Sarah - jump in any time. Thanks, Linda

    Comment


    • #3
      Margie,

      I feel very strongly about this. It is your health that is the issue here. If you want to be seen by a specialist in HCM, then you should make it happen. It is not unreasonable to request this. I am not sure what your cardiologist has to "justify." Healthcare should be a working relationship between patient and doctor but the health in question is always the patient's. I know everyone's situation is a little different.

      Bob
      Cleveland Myectomy Crew
      Member since November 2002

      \"Chance favors the prepared mind!\"

      Comment

      Today's Birthdays

      Collapse

      Working...
      X