If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

can you live several years if there is success with meds?

Collapse

About the Author

Collapse
cynthiaG Find out more about cynthiaG
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    can you live several years if there is success with meds?

    I know that any doctor cannot predict this, but has anyone out there been taking medications for HCM (due to congestive heart failure) for many years??
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson
    Tags: None
  • #2
    CHF is reversable - you will likely manage it with meds and revert back to "normal" then have periodic episiodes of CHF - this can go on for 20-30 years!! maybe longer....do not worry
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    • #3
      thanks, Lisa

      Thanks for your input. It's just that I have known that I had HCM since the mid 80's and have been very fortunate to not have experienced ANY problems up until now. I know that I am being referred to some of the top HCM specialists in the country at NEMC. My doctor was "concerned" about my left ventricle being somewhat "beefy" as he put it but didn't act like I had to be seen ASAP...I have an appt. in Boston in early March. I'm just so nervous because I had possible CHF a few months ago>it's just that when I first heard those words "congestive heart failure", from my other doctor, I almost broke down right then and there because all I could think of was my father who died of that, but he was almost 72...I'm only 49 yrs. old with an 8 yr. old son and hoping for the best. I know medicine has come a long way and hoping I do too! thanks again.
      \"It is not length of life, but depth of life.\"

      Ralph Waldo Emerson

      Comment

      Previous template Next

      Today's Birthdays

      Collapse
      Working...
      X