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Nancy Sarvis Find out more about Nancy Sarvis
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  • Hello to all

    Hello all. Just checking in. I've read the board daily but haven't posted much. My mother had a knee replcement last week and she's needed me to help her get on her feet. At least I'm able now to help her. A few short months ago I wasn't much help to anyone. I have to see my cardiologist here on Friday. I'm having some pretty bad swelling in my feet and legs and hands so I'm going to have it checked out. I'm battling fatigue and some shortness of breath also. I see a pulmonologist on the 3rd of Feb. for secondary pulmonary hyperension which has almost the same symptoms as HCM. I'm mostly better since the myectomy(NO MORE CHEST PAIN !) I've not had a pulmonologist yet but I want to go ahead and get one. None of my doctors have thought to refer me to one but I'm doing it just for me and my peace of mind. I hope Lisa and Sarah are both better!!!
    Obstructive HCM, Pacemaker 1999, Septal Myectomy 2002

  • #2
    Hi Nancy. I'm glad you're able to help your mom. Just remember to take care of yourself too. Good luck with the pulmonologist.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Hi Nancy -
      Great to hear from you!
      I hope your mother is feeling better and I am so happy to hear your feeling better after your myectomy!
      I am on my way back to "normal"...what ever that is

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Hi, Nancy,

        I, too, am glad you're feeling better. I hope a med change helps with your fluid retention.

        But mostly I'm writing from personal experience helping two people (at different times) with knee replacements (my mother and my husband). The second and third weeks after the surgery were the worst, meaning they had the most pain and were the most uncooperative with rehab procedures. They were real short-tempered (!). That was the most important period for me to pay attention to taking care of me so I could keep helping the patient.

        So don't be surprised if the caretaking role gets more difficult for awhile. And do take care of you!

        Pat

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        • #5
          My dad had a knee replacement nearly 2 years ago now...
          The 2nd and 3rd week was not his favorite time! It is a difficult procedure and one that requires a great deal of cooperation and participation from the patient to really work well.
          Dad is doing good now..he no longer waddles...he walks!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

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