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  • HCMA Newsletter

    Hello, I was just wandering how the newsletter is going? I haven't heard or seen anything about it in awhile.
    Heart Transplant 7/16/06 - PRAISE GOD

  • #2
    newsletter

    The newsletter was at the printer's last I heard, but Lisa has been very sick over and over again all this fall and winter which is probably what is holding up the works.

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    • #3
      Newsletter

      Hi..

      We are hoping for the end of this week...beginning of next. Lisa did have some new additions to add...and as Sarah said...she has not been feeling very well. The newsletter is at the printers and we overnighted everyones mailing address to them on Friday. Just a little longer....its well worth the wait...has lots of info in it.
      Ellen
      HCMA

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      • #4
        I know I said I was sending it out prior to Christmas...sorry...I did want to add all the information on the new website to those who have not been online in a while..so I waited until the site was 111% DONE then sent it out!
        it is 24 pages long and well worth the wait!
        After this one they will be more frequent and some will be solely online - othters will be printed and web based!
        Honestly I have been ill much of the time since Christmas also so this has held me up as well...
        I am looking for a FULL body transplant...can anyone help
        Well until that is available I guess I will make due with this one!
        Best to all,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          HI all here is the latest on the newsletter. THANKS to Ellen the newsletters are being mailed begining today from our wonderful printers in Sterling Virgina!
          As you know I have been rather sick and unable to get out of bed. Ellen helped out by getting the list off to the printers for me and took a great deal of stress off of me!
          So watch your mail boxes...you have a great deal of reading headed your way - 24 pages long!
          Enjoy it!
          lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          Today's Birthdays

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