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HCM can take its toll


About the Author


Pam Alexson single mother of 3 wonderful young adults;a special ed teacher, an RN and a senior accountant. Find out more about Pam Alexson
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  • HCM can take its toll

    Many of you already know this, but I will share it with the entire community today as I have surgery tomorrow. I am having a partial colectomy and a hernia repair tomorrow at Tufts.

    I have been sparsely posting here and there not because I do not care,or have not been continually invested in all that goes on and all the successful myectomies, etc etc.. I have read every post everyday over the last several months and share in the triumphs.

    The reason for my sparsity is I have been struggling with repeated bouts of diverticulitis and generally not feeling well with some complications from the treatments and medications . It has been decided that it is best to take out the bad part of my colon and to fix my 24 year old hernia. I got that hernia at age 33.. 8 weeks after a c-section to deliver my last child who weighed in at 11 pounds and 1/2 ounce. I was on a family day in Newport RI and fell while walking on a jetty over the ocean. On that day I broke my left arm in 2 and popped the hernia through the incision. The arm has been fixed for 24 years, I am not sure why anyone has let me keep the hernia for so long. So this will be a 2 for one surgery. If all goes well and as planned I should have minimal invasion with laparoscopic procedure for the colectomy and traditional surgery for the hernia repair. I also have to have 2 stents put into my ureters .. something they do so the colon surgeon does not accidentally cut my ureters during the surgery..I guess something that is not uncommon as they are hard to see during the surgery??
    So one team will come in from urology and then the colon surgical team. Hopefully I will be home in 4 days if all goes well and as planned.

    So the toll seems bit by bit pieces of me have been compromised with how my HCM effects me.. however, tomorrow I will try to get another piece corrected and taken back.

    As I close my eyes tomorrow I will be thinking of all the great things that happen here and all the great people you are here at the HCMA message board .

    So I will be away .. just for a while.
    Thank you in advance for positive thoughts and well wishes.

    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

  • #2
    Re: HCM can take its toll

    Pam, I will be thinking of you tomorrow and hoping for the best possible outcome from your surgery.
    "Some days you're the dog... some days you're the hydrant."


    • #3
      Re: HCM can take its toll

      Dear Pam,

      You are one tough cookie! Remember that! Be strong tomorrow. We will all be sending you positive energy. Wishing you a speedy recovery, and please hurry back. You will be missed!


      • #4
        Re: HCM can take its toll


        Thank you for sharing this with us. WOW! You have had more going on than many of us realized! You will be in my prayers as you go into surgery tomorrow. It is one of the better surgical breakthroughs that so many surgeries can be completed through laparoscopy, so much less time in the hospital, much fewer complications. God Bless.

        Dx Dec 2005 - HOCM with gradient of 80at rest, provokable to 150. Alcohol Ablation on Dec 22, 2005.
        Echos in April 2007 shows 0 gradient at rest, but gradient of 100 on provocation


        • #5
          Re: HCM can take its toll

          Pam - You are in our thoughts and prayers. Please ask Tim or one of your other kids to update us and let us know how you are doing.


          Daughter of Father with HCM
          Diagnosed with HCM 1999.
          Full term pregnancy - Son born 11/01
          ICD implanted 2/03; generator replaced 2/2005 and 2/2012
          Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


          • #6
            Re: HCM can take its toll


            So glad you get to have laparoscopic surgery for this. This past May I found out I had diverticulitis the hard way. In the ER and an MRI revealed a ruptured colon from diverticulitis. Thirty minutes later I was in surgery to remove the bad section of colon and put in a temporary colostomy bag. At the end of July they reversed it. Each trip was a seven day hospital stay.

            You will be in my prayers for a speedy recovery!

            Take care,
            May 1993 - Diagnosed Apical HCM
            Nov 2010 - ICD


            • #7
              Re: HCM can take its toll

              I'll be thinking of you.

              Myectomy on Feb. 5, 2007.


              • #8
                Re: HCM can take its toll


                I wish you the very best! you have been through a lot..you are in my thoughts... take care

                \"It is not length of life, but depth of life.\"

                Ralph Waldo Emerson


                • #9
                  Re: HCM can take its toll

                  You more than anyone here, with your personal sharing, has helped me to accept things I've struggled with the most. Good luck and you're in my thoughts and prayers.
                  John F.
                  had HCM since birth
                  'enlarged heart' identified in 96'
                  HOCM dx in 7/08
                  Myectomy 8/09
                  extended Myectomy 5/10
                  'End stage' HCM dx 8/10
                  CRT-D implanted 9/10
                  evaluated for Transplant 11/10
                  Listed for transplant 6/11


                  • #10
                    Re: HCM can take its toll


                    God Squad co-moderator
                    Nothing is as gentle as strength and nothing is as strong as gentleness


                    • #11
                      Re: HCM can take its toll

                      Sending prayers and healing thoughts.



                      • #12
                        Re: HCM can take its toll


                        You will be in my thoughts and prayers. Very best wishes to you.
                        ICD 1/20/10
                        Myectomy 8/25/10
                        @ Johns Hopkins
                        Surgeon Duke Cameron


                        • #13
                          Re: HCM can take its toll

                          Many well wishes and blessings sent your way for a speedy recovery and for restoration.
                          HOCM diagnosed Mayo Clinic Aug. 2010

                          25 mg of atenolol.


                          • #14
                            Re: HCM can take its toll

                            Pam, I will be praying for you.

                            My ex-husband has diverticulitis. He has had his struggles with over the years. Oddly enough, when he eats fast food, he has less problems then when he eats vegetables.

                            In May of this year, I was in the hospital for (I'm going to go ahead and say it) a perirectal abscess. Oh that sucker hurt! I also had a UTI and was on IV antibiotics for 3 days in the hospital.

                            I am so sorry to hear you have more issues than just the HCM. As if that is not enough. I believe you will be much better very soon, and many prayers going up for you.

                            Lots of hugs.
                            49 yrs. old
                            Diagnosed at 31.
                            Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                            First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                            Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                            Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                            My brother passed away suddenly at 34 yrs old from HCM.
                            2 teenage children, ages 17 and 15.


                            • #15
                              Re: HCM can take its toll

                              You know my hugs and prayers are with you

                              Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                              ICD&Pacemaker 1996
                              Heart transplant March 19, 2004 @ Mayo Rochester
                              Mom of Kaye.