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Cardiomyopathy Surgery

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  • Cardiomyopathy Surgery

    [Cardiomyopathy Surgery]

    Author: Patrick (---.proxy.aol.com)

    Date: 01-07-03 15:01

    Hey folks,

    I am a 34 year old man that has been recently diagnosed with Hypertrophic Cardiomyopathy. I live in Georgia and have been seeing a doctor at Emory University. I never had any symptoms until about 3 years ago. I played college football and never had any problems. I also did powerlifting for years but no problems with my heart. I am also an alcoholic and addict that has been sober for several years. The doctors say that my gradiant is 60% and when they stressed it on a test it went to 100%. Lisa says Im very lucky to be here today. Its true, I have always had a lot of luck. God has blessed me.

    I am writing this to ask advice about the myectomy surgery. Can anyone with experience give me some info. I am considering this surgery. I have 4 children under the age of 7 and would like to see them grow up.

    Thanks,

    Patrick

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    [Re: Cardiomyopathy Surgery]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 01-07-03 15:11

    Dear Patrick,

    Glad to hear from you --glad you are still here, too.

    Please use the Search function at the top of the board to look for posts with the word "myectomy" in them and you will have tons of reading! Lots of myectomies here and lots of good reports.

    Take care,

    Sarah

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    [Re: Cardiomyopathy Surgery]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 01-07-03 16:06

    Patrick, I am glad to see you here on the board...welcome!

    I warn you guys ...this guy has a great sense of humor and is gonna be some fun out here!

    Judy - Elizabeth, Bob, Jerry, John J., Howard...and the rest of you----Hey guys give him a hand.

    Thanks!

    Lisa

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    [Re: Cardiomyopathy Surgery]

    Author: karen (---.dyn.optonline.net)

    Date: 01-07-03 16:23

    Hi Patrick,

    You are certainly blessed Patrick! Could it be the luck of the Irish?? I can't help you with the myectomy questions. We've had a few pacers, ICDs, ablations, etc, but no myectomy to date. This is a wonderful site & I'm sure you'll get many questions answered. Take care & keep us posted. And....4 children under 7 years old!? You must be a busy dad!

    Karen

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    [Re: Cardiomyopathy Surgery]

    Author: Robert Hartwell (144.195.62.---)

    Date: 01-08-03 07:02

    Patrick,

    I am now 8 weeks post myectomy surgery, 41 with 2 young children. Please follow Sarah's advice about all of the past threads on Myectomy surgery as they cover a lot of ground. If you still have questions/concerns, please post them here or you can e-mail me off-board and I would be happy to answer.

    Bob Hartwell

    CMC - 2002

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cardiomyopathy Surgery]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 01-08-03 07:16

    I think we need to explain the CMC to Patrick..anyone care to take this... I'm still not feeling great....

    Lisa

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    [Re: Cardiomyopathy Surgery]

    Author: Patrick (---.proxy.aol.com)

    Date: 01-08-03 08:14

    Yes, Lisa has a sore throat from breathing all that Jersey air. Hey Karen, its not the luck of the Irish but the luck of the Dawgs. Thanks for all the imput guys!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cardiomyopathy Surgery]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 01-08-03 08:23

    See here he goes already... now Patrick...you live in Georgia...ya want me to start on that???

    Ya see NJ has spent YEARS making you all think that it is a terrible place...truth be told...we just want to keep it to ourselves!

    I am not kidding here guys..Patrick is a wiseguy and I am not related to him...hmm genetics...is the HCM that makes us this way???

    Lisa

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    [Re: Cardiomyopathy Surgery]

    Author: Elizabeth (---.fuse.net)

    Date: 01-08-03 09:15

    Dear Patrick,

    If your specialist is recommending myectomy surgery for you, I say do it. I had a myectomy and mitral valve repair at Cleveland Clinic July of 2001. The improvement in my quality of life since the surgery has been drammatic. I didn't realize how many symptoms I had nor how debilitating they were until they were gone. Suddenly I could do things without being constantly dizzy and extremely tired. Yes, it is difficult and scary surgery, and, there are members of the HCMA who have had major complications from the surgery. I'm praying that they are doing better in the new year!!!! Also, the recovery process is long and slower than you expect and patience is a must. But I would do it over again without hesitating. Good luck with your decision and feel free to e-mail if you have more questions.

    Elizabeth

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    [Re: Cardiomyopathy Surgery]

    Author: betsy trawick (---.atl.client2.attbi.com)

    Date: 01-08-03 16:14

    Hi Patrick - I am also from Georgia, have HCM and am seeing a cardiologist at Emory - Jerre Lutz. My 2 sons have HCM as well - my 20 year old son died from sudden death this summer - jogging in our neighborhood. My youngest son had myectomy surgery l year ago - it was a miraculous success. I'd love to talk with you about the procedure and HCM in general - You are so very lucky to still be here with having HCM, being a college ball player and a party boy! My husband was a college ball player, my son who died dreamed of being a ball player but with his unfortunate diagnosis, no one on the planet would allow him to do any type of athletics - the best he could do was intramural, watch it on TV, gamble online, and party. Good luck. Let me know if you'd like to talk and I'll share my phone # with you.
    NOTE: This is a post from the previous forum message board.

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