[Alcohol Ablation]

Author: Robbie (---.proxy.aol.com)

Date: 01-04-03 08:35

****'o,

One yeae ago this month I was in S.Carolina having an alcohol ablation.It was preformed by Dr.William Spencer.I am 50 and have known for about 10 years that I have HCMA.My symptoms became severe(chest pain,weight on chest,shortness of breath,B.P.&H.R. dropped etc.)I could barely cross a room without stopping to rest. They did a cath on me after I collapsed at work,it did not show any change.While my doc was trying to figure out what was going on(after rest my B.P. & H.R. went back up)I collapsed at work again.This time he did an echo.My gradient at rest was 90.He took me off work & started contact with Dr.Spencer.I was off work 3 months.Half that time I was waiting for approval from my insurance co.No one in Tennessee was very famillar with the ablation.The procedure worked miracles for me.I have a very physical job and most days I can handle it.I am still on meds,but my mur-mur almost dissapeared.They tell you that after the ablation you improve for about a year,that has been true for me.But,now I am having sensations that my doc does not understand.It feels like my heart "rolls&flops".Also I am having a lot of "flutters".I guess he'll figure it out.Anyone that is looking into the ablation,GO FOR IT! There is very little pain with the procedure.

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[Re: Alcohol Ablation]

Author: Linda, Bd of Directors (---.wmnsmd.adelphia.net)

Date: 01-04-03 09:28

Robbie, Has your doctor done a Holter Monitor? This would show if an irregular heart beat is causing the rolls and flops, flutters you have mentioned.It's important to evaluate the cause. I'm happy for you that things are going so well otherwise. Let us know what you find out. Have you been in touch with the HCMA office and gotten the info available there? Linda

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[Re: Alcohol Ablation]

Author: Sarah B--Board Moderator (---.client.attbi.com)

Date: 01-04-03 09:38

Dear Robbie,

I'm glad the ablation worked for you. There are medications that should help reduce the "flutters." Is your doctor talking to Dr. Spencer about them?

However, it is very dangerous to assume that what works for one person will work for another. I appreciate your enthusiasm for the ablation, but it is a very serious procedure that requires very strict patient selection.

No one should have any ablations, myectomies, or devices installed without consulting a specialist and probably a second opinion too, so that they are on the right track.

Take care,

Sarah

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[Re: Alcohol Ablation]

Author: Robbie (---.proxy.aol.com)

Date: 01-04-03 19:39

Linda,

I have had 2 holter monitors in the past year. They were both normal,even when I was having sensations. I haven't contacted anyone at the board yet. I intend on doing that this week. My doc here is not in contact with the doc in S.C. I am due back for a checkup in March. I feel ok and I'm not having any other symptons. My doc here seams to think that I should not let them worry me. Thanks for the chance to talk. Robbie

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[Re: Alcohol Ablation]

Author: Linda, Bd of Directors (---.wmnsmd.adelphia.net)

Date: 01-05-03 12:13

Robbie, If you become dizzy or lightheaded with these sensations, it is something to be concerned about and checked out before March checkup. I'm assuming this is not the case from your posting. Try to keep track of these episodes, see if they are triggered by anything - caffiene, tiredness, etc. It will help your doctor to evaluate things. Also, ask the doctor specifically if you had any irregular beats. Sometimes, isolated irregular beats (meaning only occaisional) beats may not be a concern to the doctor and he may read it as "normal". You can check your pulse and feel if it is irregular when you feel these flipflops. Linda