If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • newly diagnosed

    [newly diagnosed]

    Author: doug kittredge (---.nap.wideopenwest.com)

    Date: 12-30-02 04:46

    As the subject says, I have just been diagnosed and am looking for advise:

    I found a book "The Official Patient's sourceBook on Hypertrophic Cardiomyopathy" on Barnes and Noble - does anyone know the book and would they recommend it?

    I am in the western suburbs of Chicago. Any advice on finding a cardiologist?

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: newly diagnosed]

    Author: Sarah B. Board Moderator (12.144.99.---)

    Date: 12-30-02 07:06

    Dear Doug,

    Welcome to the club you never wanted to join. I'm glad you found us. I'm the moderator here and I live in Wicker Park (I grew up in Wheaton) and I work in Des Plaines. (non-Chicagoans, lets just say I know the area).

    I haven't read the book you mention, and the info on HCMA changes very quickly.

    However, the HCMA president, Lisa Salberg, and our chief medical advisor, Dr. Barry Maron, co-wrote a great book on HCM that you can get with your membership (see the membership page for info).

    Lisa also likes to talk to new members personally and help you find a specialist. We don't just post doctors names and numbers up here b/c choosing a doctor is very important and can often require discussing information (ie your private life) that is not appropriate for a public message board. You can e-mail her your contact info or you can call her at 973-983-7429.

    You can also e-mail me your contact info and we can talk about local doctors.

    We are also planning a Chicago get together for HCMA members on March 29th or 30th --whichever is that Saturday.

    Where are you exactly? Where were you diagnosed? Did you get a copy of the echo report? What is your family history? Do you have kids? If so, they need to be screened as well.

    Take care,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: newly diagnosed]

    Author: Robert Hartwell (---.focal8.interaccess.com)

    Date: 12-30-02 20:23

    Hi Doug!

    I live in Arlington Heights and echo everything that Sarah said above. I was diagnosed with HCM in 1999, and wish to help anyone (especially in the Chicago area) understand HCM, options, and share experiences. I agree with Sarah that this should be done off-line.

    If I can be of help to you, please feel free to e-mail me directly with contact info.

    Bob Hartwell
    NOTE: This is a post from the previous forum message board.

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