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  • newly diagnosed

    [newly diagnosed]

    Author: doug kittredge (---.nap.wideopenwest.com)

    Date: 12-30-02 04:46

    As the subject says, I have just been diagnosed and am looking for advise:

    I found a book "The Official Patient's sourceBook on Hypertrophic Cardiomyopathy" on Barnes and Noble - does anyone know the book and would they recommend it?

    I am in the western suburbs of Chicago. Any advice on finding a cardiologist?


    [Re: newly diagnosed]

    Author: Sarah B. Board Moderator (12.144.99.---)

    Date: 12-30-02 07:06

    Dear Doug,

    Welcome to the club you never wanted to join. I'm glad you found us. I'm the moderator here and I live in Wicker Park (I grew up in Wheaton) and I work in Des Plaines. (non-Chicagoans, lets just say I know the area).

    I haven't read the book you mention, and the info on HCMA changes very quickly.

    However, the HCMA president, Lisa Salberg, and our chief medical advisor, Dr. Barry Maron, co-wrote a great book on HCM that you can get with your membership (see the membership page for info).

    Lisa also likes to talk to new members personally and help you find a specialist. We don't just post doctors names and numbers up here b/c choosing a doctor is very important and can often require discussing information (ie your private life) that is not appropriate for a public message board. You can e-mail her your contact info or you can call her at 973-983-7429.

    You can also e-mail me your contact info and we can talk about local doctors.

    We are also planning a Chicago get together for HCMA members on March 29th or 30th --whichever is that Saturday.

    Where are you exactly? Where were you diagnosed? Did you get a copy of the echo report? What is your family history? Do you have kids? If so, they need to be screened as well.

    Take care,



    [Re: newly diagnosed]

    Author: Robert Hartwell (---.focal8.interaccess.com)

    Date: 12-30-02 20:23

    Hi Doug!

    I live in Arlington Heights and echo everything that Sarah said above. I was diagnosed with HCM in 1999, and wish to help anyone (especially in the Chicago area) understand HCM, options, and share experiences. I agree with Sarah that this should be done off-line.

    If I can be of help to you, please feel free to e-mail me directly with contact info.

    Bob Hartwell
    NOTE: This is a post from the previous forum message board.