If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

transplant board


About the Author


This topic is closed.
  • Filter
  • Time
  • Show
Clear All
new posts

  • transplant board

    [transplant board]

    Author: Midge Rollins (---.nas6.cedar-rapids1.ia.us.da.qwest.ne)

    Date: 12-28-02 02:03

    Does anyone know of a web site such as our HCM that is for perspective heart transplant? I could sure use one as I wait for this. Somedays, I feel like backing out and living my life how I want without any intervention with surgery. Thanks.


    [Re: transplant board]

    Author: Sarah B--Board Moderator (---.client.attbi.com)

    Date: 12-28-02 02:59

    Dear Midge,

    the U of Iowa has an in person one: http://www.uihealthcare.com/events/c...ortgroups.html

    With the new message board, we will have different sections for different topics, so I suspect one will be for transplants.

    I poked around the web a bit and I didn't find anything better than here. Honestly, Yahoo Groups didn't have any (well, they list stuff under heart transplant but it is all individuals like status.com or a specific center hosting one for their patients only).

    The one I did find had no traffic at all. I think you will find more support here and there are a few others that need transplants that post here. Also, you will find that some people prefer to e-mail you directly instead of posting.

    Hang in there. Don't try to think too far ahead. Just take care of the next ten minutes. Then you can worry about the next ten when you get there.

    big hug,



    [Re: transplant board]

    Author: Matt (---.disney.com)

    Date: 12-28-02 21:37


    I didn't find any bulletin boards per se, but I do have the following sites which may be helpful to you. The first NIH site lists many links to other sites and the second CHF site has a little section on transplants.



    Best of luck to you. I am hoping to get on the list in January.

    Take care. Matt
    NOTE: This is a post from the previous forum message board.

Today's Birthdays