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HCM patients deserve life.

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BarbaraRose Find out more about BarbaraRose
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  • HCM patients deserve life.



    Do you mean that people with HCM do not deserve to live?

    You mentioned that their are IVF experts that can assist with creating babies free of HCM...but if you take that route or rather if one hundred years ago this route was taken then you Lisa would not exist and neither would the patients that are supporting this very organization -

    I leave creation up to God - He is the one and only creator!

    So freightening that someone can think that people with hcm are not good enough for life.

    I understand HCM is not an easy diagnosis to live with but through each and every one of us you will survive. If you start choosing who you will give life to you may eliminate your very savior. The person who will actually "cure" HCM not wipe out the HCM population.

  • #2
    Re: HCM patients deserve life.

    MESSAGE TO ALL:

    This message was previously deleted from the message board, but after consultation with all of the moderators, I have now restored it and have decided to leave the message and to publicly post the response I sent in a PM to the original poster.


    Dear Barbara,

    We have a policy of avoiding discussions with politically inflammatory content on our message board. We try instead to stick to factual information. It is our job to inform our members what procedures are available to them. It is up to them to decide whether each procedure is right for them or not. We ask that our members respect each other's personal choices and allow the free exchange of information for the benefit of all of our members.

    Thanks for your understanding.
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

    Comment


    • #3
      Re: HCM patients deserve life.

      I think its a great idea having IVF experts to help have babies free of HCM,
      why would you think thats a bad thing thats crazzy,

      "not an easy diagnosis to live with" are you kidding i think you word here is LIVE , how many people die from this illness way to many if you could stop someone from getting this illness in any way at all i do not see that as wrong that amazing , i would love for HCM to be wiped out

      If one hundred years ago this route was taken then maybe i wouldent have to had a transplant maybe i wouldent have to have been on life support for a week at the age of 21 ,maybe my grandmother and aunty wouldent have passed away befor there time from HCM and maybe my father would be in hospitil right now and my 30 year old cosion wouldent have had a heart attack

      I disagree with you in so many ways

      Margi
      Margi*
      http://margi-inskeep.blogspot.com
      Forever Young

      I was diagnosedwith HCM at 6.
      Went into Atrial fibrillation so had a ICD put in at 16
      Went into Heart failure at 17
      Got a heart transplant at 21(2009)

      Comment


      • #4
        Re: HCM patients deserve life.

        K im sorry i should have though befor a spoke (or typed) i shouldent have taken it so personly
        I dont agree with what you say but everyones is allowed there own opinion

        Margi
        Margi*
        http://margi-inskeep.blogspot.com
        Forever Young

        I was diagnosedwith HCM at 6.
        Went into Atrial fibrillation so had a ICD put in at 16
        Went into Heart failure at 17
        Got a heart transplant at 21(2009)

        Comment

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