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[Palpatations(spelling)]
Author: Jason (---.ushwy1.com)
Date: 12-22-02 17:23
Hello & merry christmas. I'm wondering about a couple of things. First I've read on here that when you are diagonsed with HCM that your condition usally does not get any worse. If thats the case, why does it seem like my syptoms are getting worse. IE. chest pains, shortness of breath, & what I think are palpations? Thats my main question, What are they, how do I know what they feel like? I'm having these funny (jumps) it feels like in my chest tonight. Seems like its bad today. Is that what a palpatation feels like? Should I buy my own heart mointer so I can keep an eye on myself? Everyone please have a great holiday. I know I'm gonna enjoy a couple of days off. Thank you.
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[Re: Palpatations(spelling)]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 12-22-02 17:40
Jason, Some with HCM do progress in symptoms and others do not. Some have changes in symptoms that last for short periods of time and then you revert back to the way you had been. This is a very individual disease and it is not a good idea to try to lump us all in the same place.
You should discuss your symtoms with your doctor there maybe an underlying reason that needs attention. PLEASE do not try to play doc. for yourself with a home monitor... you may misread some important information...
The last thing we want to see is you not getting quality care! You all know how I feel about getting to GOOD care! and those who have taken that advise overwhelmingly feel better...
Happy holidays and I hope you are feeling better very soon.
Lisa
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[Re: Palpatations(spelling)]
Author: Board Moderator (Sarah Beckley (---.client.attbi.com)
Date: 12-22-02 18:40
and heart monitors just tell you your rate, they don't tell you the rhythm, which is also important.
S
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[Re: Palpatations(spelling)]
Author: Glen (65.247.42.---)
Date: 12-23-02 04:34
Jason, I was diagnosed in my early 20s, I'm 54 now and over the years my condition has not changed, but that is not always the case.
In my case the jumpy, fluttering feeling in my chest is premature heart beat, (some would say a skipped beat feeling), a lot of HCMers get this and in most cases this is not dangerous, just annoying.
It could also be an irregular beat, in either case you need to go to specialist and they would probably have you monitored for 24-48 hours to see what it is in your case.
Don't take anything for granted, including what I or anyone else says here, HCM is so diversified and everyones is different.
Good Luck and stay well
Glen.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (208.47.172.---)
Date: 12-23-02 07:52
Glen - you are SO right.. this is the internet..not a doctors office our care belongs in the hands of the medical professionals.
Although we all may prefer to ignore our symptoms ( I myself can be guilty of that from time to time) WE must listen to our bodies and give it the help it needs.
Just some thoughts to share...
Jason, please take care of yourself.
Best wishes,
Mama bear - Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Wade (---.eds.com)
Date: 12-23-02 11:25
The more posts I read the more I can see how different the effects and symptoms of HCM are from person to person. Just curious - do HCM patients typically have a high or low blood pressure, or is there no correlation to bp and HCM?
Cheers,
Wade
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Board Moderator (Sarah Beckley (---.client.attbi.com)
Date: 12-23-02 12:36
Dear Wade,
High blood pressure is not a symptom of HCM. However, most of the medication prescribed for HCM will lower your bp.
However, HCM doesn't "protect" you from having high bp from other things, so sometimes people may have high bp, too.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (208.47.172.---)
Date: 12-23-02 12:44
Many have normal B/P's and some have high and others low... is this a good answer..NO... but it what I know at this at this time....
When I know more so will you
Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Wade (---.blumtn01.pa.comcast.net)
Date: 12-23-02 20:29
Muito Obrigado, RingraziarLo, Merci, Vielen Dank, Gracias, Thank You! Personally my B/P is normally slightly high, but as you said - the calcuim channel blocker I take has lowered it some (that's what they tell me). And I don't really speak all of the languages I said before, someone just gave me a translation dictionary as a Christmas gift.
Happy holidays all!
Wade
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 12-24-02 03:58
In return I wish you a "God Jul" which is Merry Christmas in Norwegian
Pronounced: Good yul
Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Brie Rodighiero (---.nas7.thornton1.co.us.da.qwest.net)
Date: 12-30-02 20:17
It's been a while since I posted, but I wanted to wish everyone a late Merry Christmas and a Happy new Year's.
jason~I've been dealing with the same syptoms for over a year, and I will tell you tyhat at first it really scared me, but know I realize that it's just some thing I have to live with. I take 240mg of Veramil (calcuim channel bocker) and some days I feel it helps and other it doesn't. So I wish you the best!
PS~my BP has droped ALOT since I started the calcuim channel bocker. Every nurse always says "wow your BP is so low"
Take care everyone, and happy holidays again!
Brie Rodighiero
Author: Jason (---.ushwy1.com)
Date: 12-22-02 17:23
Hello & merry christmas. I'm wondering about a couple of things. First I've read on here that when you are diagonsed with HCM that your condition usally does not get any worse. If thats the case, why does it seem like my syptoms are getting worse. IE. chest pains, shortness of breath, & what I think are palpations? Thats my main question, What are they, how do I know what they feel like? I'm having these funny (jumps) it feels like in my chest tonight. Seems like its bad today. Is that what a palpatation feels like? Should I buy my own heart mointer so I can keep an eye on myself? Everyone please have a great holiday. I know I'm gonna enjoy a couple of days off. Thank you.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 12-22-02 17:40
Jason, Some with HCM do progress in symptoms and others do not. Some have changes in symptoms that last for short periods of time and then you revert back to the way you had been. This is a very individual disease and it is not a good idea to try to lump us all in the same place.
You should discuss your symtoms with your doctor there maybe an underlying reason that needs attention. PLEASE do not try to play doc. for yourself with a home monitor... you may misread some important information...
The last thing we want to see is you not getting quality care! You all know how I feel about getting to GOOD care! and those who have taken that advise overwhelmingly feel better...
Happy holidays and I hope you are feeling better very soon.
Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Board Moderator (Sarah Beckley (---.client.attbi.com)
Date: 12-22-02 18:40
and heart monitors just tell you your rate, they don't tell you the rhythm, which is also important.
S
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Glen (65.247.42.---)
Date: 12-23-02 04:34
Jason, I was diagnosed in my early 20s, I'm 54 now and over the years my condition has not changed, but that is not always the case.
In my case the jumpy, fluttering feeling in my chest is premature heart beat, (some would say a skipped beat feeling), a lot of HCMers get this and in most cases this is not dangerous, just annoying.
It could also be an irregular beat, in either case you need to go to specialist and they would probably have you monitored for 24-48 hours to see what it is in your case.
Don't take anything for granted, including what I or anyone else says here, HCM is so diversified and everyones is different.
Good Luck and stay well
Glen.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (208.47.172.---)
Date: 12-23-02 07:52
Glen - you are SO right.. this is the internet..not a doctors office our care belongs in the hands of the medical professionals.
Although we all may prefer to ignore our symptoms ( I myself can be guilty of that from time to time) WE must listen to our bodies and give it the help it needs.
Just some thoughts to share...
Jason, please take care of yourself.
Best wishes,
Mama bear - Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Wade (---.eds.com)
Date: 12-23-02 11:25
The more posts I read the more I can see how different the effects and symptoms of HCM are from person to person. Just curious - do HCM patients typically have a high or low blood pressure, or is there no correlation to bp and HCM?
Cheers,
Wade
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Board Moderator (Sarah Beckley (---.client.attbi.com)
Date: 12-23-02 12:36
Dear Wade,
High blood pressure is not a symptom of HCM. However, most of the medication prescribed for HCM will lower your bp.
However, HCM doesn't "protect" you from having high bp from other things, so sometimes people may have high bp, too.
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (208.47.172.---)
Date: 12-23-02 12:44
Many have normal B/P's and some have high and others low... is this a good answer..NO... but it what I know at this at this time....
When I know more so will you
Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Wade (---.blumtn01.pa.comcast.net)
Date: 12-23-02 20:29
Muito Obrigado, RingraziarLo, Merci, Vielen Dank, Gracias, Thank You! Personally my B/P is normally slightly high, but as you said - the calcuim channel blocker I take has lowered it some (that's what they tell me). And I don't really speak all of the languages I said before, someone just gave me a translation dictionary as a Christmas gift.
Happy holidays all!
Wade
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Lisa Salberg (---.dyn.optonline.net)
Date: 12-24-02 03:58
In return I wish you a "God Jul" which is Merry Christmas in Norwegian
Pronounced: Good yul
Lisa
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Palpatations(spelling)]
Author: Brie Rodighiero (---.nas7.thornton1.co.us.da.qwest.net)
Date: 12-30-02 20:17
It's been a while since I posted, but I wanted to wish everyone a late Merry Christmas and a Happy new Year's.
jason~I've been dealing with the same syptoms for over a year, and I will tell you tyhat at first it really scared me, but know I realize that it's just some thing I have to live with. I take 240mg of Veramil (calcuim channel bocker) and some days I feel it helps and other it doesn't. So I wish you the best!
PS~my BP has droped ALOT since I started the calcuim channel bocker. Every nurse always says "wow your BP is so low"
Take care everyone, and happy holidays again!
Brie Rodighiero