If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Palpatations(spelling)

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Palpatations(spelling)

    [Palpatations(spelling)]

    Author: Jason (---.ushwy1.com)

    Date: 12-22-02 17:23

    Hello & merry christmas. I'm wondering about a couple of things. First I've read on here that when you are diagonsed with HCM that your condition usally does not get any worse. If thats the case, why does it seem like my syptoms are getting worse. IE. chest pains, shortness of breath, & what I think are palpations? Thats my main question, What are they, how do I know what they feel like? I'm having these funny (jumps) it feels like in my chest tonight. Seems like its bad today. Is that what a palpatation feels like? Should I buy my own heart mointer so I can keep an eye on myself? Everyone please have a great holiday. I know I'm gonna enjoy a couple of days off. Thank you.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 12-22-02 17:40

    Jason, Some with HCM do progress in symptoms and others do not. Some have changes in symptoms that last for short periods of time and then you revert back to the way you had been. This is a very individual disease and it is not a good idea to try to lump us all in the same place.

    You should discuss your symtoms with your doctor there maybe an underlying reason that needs attention. PLEASE do not try to play doc. for yourself with a home monitor... you may misread some important information...

    The last thing we want to see is you not getting quality care! You all know how I feel about getting to GOOD care! and those who have taken that advise overwhelmingly feel better...

    Happy holidays and I hope you are feeling better very soon.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Board Moderator (Sarah Beckley (---.client.attbi.com)

    Date: 12-22-02 18:40

    and heart monitors just tell you your rate, they don't tell you the rhythm, which is also important.

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Glen (65.247.42.---)

    Date: 12-23-02 04:34

    Jason, I was diagnosed in my early 20s, I'm 54 now and over the years my condition has not changed, but that is not always the case.

    In my case the jumpy, fluttering feeling in my chest is premature heart beat, (some would say a skipped beat feeling), a lot of HCMers get this and in most cases this is not dangerous, just annoying.

    It could also be an irregular beat, in either case you need to go to specialist and they would probably have you monitored for 24-48 hours to see what it is in your case.

    Don't take anything for granted, including what I or anyone else says here, HCM is so diversified and everyones is different.

    Good Luck and stay well

    Glen.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Lisa Salberg (208.47.172.---)

    Date: 12-23-02 07:52

    Glen - you are SO right.. this is the internet..not a doctors office our care belongs in the hands of the medical professionals.

    Although we all may prefer to ignore our symptoms ( I myself can be guilty of that from time to time) WE must listen to our bodies and give it the help it needs.

    Just some thoughts to share...

    Jason, please take care of yourself.

    Best wishes,

    Mama bear - Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Wade (---.eds.com)

    Date: 12-23-02 11:25

    The more posts I read the more I can see how different the effects and symptoms of HCM are from person to person. Just curious - do HCM patients typically have a high or low blood pressure, or is there no correlation to bp and HCM?

    Cheers,

    Wade

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Board Moderator (Sarah Beckley (---.client.attbi.com)

    Date: 12-23-02 12:36

    Dear Wade,

    High blood pressure is not a symptom of HCM. However, most of the medication prescribed for HCM will lower your bp.

    However, HCM doesn't "protect" you from having high bp from other things, so sometimes people may have high bp, too.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Lisa Salberg (208.47.172.---)

    Date: 12-23-02 12:44

    Many have normal B/P's and some have high and others low... is this a good answer..NO... but it what I know at this at this time....

    When I know more so will you

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Wade (---.blumtn01.pa.comcast.net)

    Date: 12-23-02 20:29

    Muito Obrigado, RingraziarLo, Merci, Vielen Dank, Gracias, Thank You! Personally my B/P is normally slightly high, but as you said - the calcuim channel blocker I take has lowered it some (that's what they tell me). And I don't really speak all of the languages I said before, someone just gave me a translation dictionary as a Christmas gift.

    Happy holidays all!

    Wade

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 12-24-02 03:58

    In return I wish you a "God Jul" which is Merry Christmas in Norwegian

    Pronounced: Good yul

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Palpatations(spelling)]

    Author: Brie Rodighiero (---.nas7.thornton1.co.us.da.qwest.net)

    Date: 12-30-02 20:17

    It's been a while since I posted, but I wanted to wish everyone a late Merry Christmas and a Happy new Year's.

    jason~I've been dealing with the same syptoms for over a year, and I will tell you tyhat at first it really scared me, but know I realize that it's just some thing I have to live with. I take 240mg of Veramil (calcuim channel bocker) and some days I feel it helps and other it doesn't. So I wish you the best!

    PS~my BP has droped ALOT since I started the calcuim channel bocker. Every nurse always says "wow your BP is so low"

    Take care everyone, and happy holidays again!

    Brie Rodighiero
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

There are no members with birthdays today.

Working...
X