If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • Information packet

    [Information packet]

    Author: Chuck (159.121.96.---)

    Date: 12-06-02 07:32

    I have seen in many threads her references to an information packet. How do I get one of these? I was diagnosed with HCM 7 years ago and didn't really give it much thought until recently when I had to have an ICD put in and my symptoms had increase to be nearly disabling. Now I am trying to get as much information about HCM as possible. Please help.

    Chuck

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Information packet]

    Author: Sarah B. Board Moderator (12.144.99.---)

    Date: 12-06-02 07:49

    Dear Chuck

    Call or e-mail the office with your full name and mailing address. hit the membership link at the top of this page for all the details.

    Take care,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Information packet]

    Author: Jason (---.ushwy1.com)

    Date: 12-06-02 18:59

    Hello, if your condition gets worse, does that mean your heart got worse, or just your symptoms? This could be a silly ? or maybe it's not. I ask cause I feel worse all the time but my heart does not show that it's geeting any worse than it was two years ago. Thank you.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Information packet]

    Author: Chuck (159.121.96.---)

    Date: 12-09-02 07:29

    Both the symptoms and condition of my heart have gotten worse. I had an echo in July that showed that I had non-obstructive HCM. They then wanted to do a stress-echo but refused to put me on the treadmill after they did an echo on me at rest. The new echo done a couple of months ago showed that I now have obstructive HCM. It kind of freaked me out when they refused to put me on the treadmill. I have a hard time walking now and have found that things tend to make me feel a little disabled.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Information packet]

    Author: Sarah B. Board Moderator (12.144.99.---)

    Date: 12-09-02 08:07

    Dear Jason,

    Everyone is different. Are you seeing a specialist? If not, please call the HCMA at 973-983-7429 to get more information.

    take care,

    Sarah
    NOTE: This is a post from the previous forum message board.

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