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[Information packet]
Author: Chuck (159.121.96.---)
Date: 12-06-02 07:32
I have seen in many threads her references to an information packet. How do I get one of these? I was diagnosed with HCM 7 years ago and didn't really give it much thought until recently when I had to have an ICD put in and my symptoms had increase to be nearly disabling. Now I am trying to get as much information about HCM as possible. Please help.
Chuck
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[Re: Information packet]
Author: Sarah B. Board Moderator (12.144.99.---)
Date: 12-06-02 07:49
Dear Chuck
Call or e-mail the office with your full name and mailing address. hit the membership link at the top of this page for all the details.
Take care,
Sarah
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[Re: Information packet]
Author: Jason (---.ushwy1.com)
Date: 12-06-02 18:59
Hello, if your condition gets worse, does that mean your heart got worse, or just your symptoms? This could be a silly ? or maybe it's not. I ask cause I feel worse all the time but my heart does not show that it's geeting any worse than it was two years ago. Thank you.
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[Re: Information packet]
Author: Chuck (159.121.96.---)
Date: 12-09-02 07:29
Both the symptoms and condition of my heart have gotten worse. I had an echo in July that showed that I had non-obstructive HCM. They then wanted to do a stress-echo but refused to put me on the treadmill after they did an echo on me at rest. The new echo done a couple of months ago showed that I now have obstructive HCM. It kind of freaked me out when they refused to put me on the treadmill. I have a hard time walking now and have found that things tend to make me feel a little disabled.
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[Re: Information packet]
Author: Sarah B. Board Moderator (12.144.99.---)
Date: 12-09-02 08:07
Dear Jason,
Everyone is different. Are you seeing a specialist? If not, please call the HCMA at 973-983-7429 to get more information.
take care,
Sarah
Author: Chuck (159.121.96.---)
Date: 12-06-02 07:32
I have seen in many threads her references to an information packet. How do I get one of these? I was diagnosed with HCM 7 years ago and didn't really give it much thought until recently when I had to have an ICD put in and my symptoms had increase to be nearly disabling. Now I am trying to get as much information about HCM as possible. Please help.
Chuck
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Information packet]
Author: Sarah B. Board Moderator (12.144.99.---)
Date: 12-06-02 07:49
Dear Chuck
Call or e-mail the office with your full name and mailing address. hit the membership link at the top of this page for all the details.
Take care,
Sarah
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Information packet]
Author: Jason (---.ushwy1.com)
Date: 12-06-02 18:59
Hello, if your condition gets worse, does that mean your heart got worse, or just your symptoms? This could be a silly ? or maybe it's not. I ask cause I feel worse all the time but my heart does not show that it's geeting any worse than it was two years ago. Thank you.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Information packet]
Author: Chuck (159.121.96.---)
Date: 12-09-02 07:29
Both the symptoms and condition of my heart have gotten worse. I had an echo in July that showed that I had non-obstructive HCM. They then wanted to do a stress-echo but refused to put me on the treadmill after they did an echo on me at rest. The new echo done a couple of months ago showed that I now have obstructive HCM. It kind of freaked me out when they refused to put me on the treadmill. I have a hard time walking now and have found that things tend to make me feel a little disabled.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[Re: Information packet]
Author: Sarah B. Board Moderator (12.144.99.---)
Date: 12-09-02 08:07
Dear Jason,
Everyone is different. Are you seeing a specialist? If not, please call the HCMA at 973-983-7429 to get more information.
take care,
Sarah