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  • growing hypertraphy

    [growing hypertraphy]

    Author: Leon (---.lncstr01.pa.comcast.net)

    Date: 11-29-02 04:47

    HI Lisa. Thanks for sending the book. I have already read it. On page 46 it reads, "...once hypertrophy is in place in mature adults, there is no evidence that it will increase further with aging."

    My question is this. I was diagnosed at 34. My hypertraphy is still growing according to my cardiologist. Between January 1999 and September 2002 it has increased "a little bit, which is to be expected."

    Is this abnormal or am I a late bloomer?

    Thanks for any insight you might have.

    Peace,

    Leon

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    [Re: growing hypertraphy]

    Author: Sarah B. -Board Moderator (---.client.attbi.com)

    Date: 11-29-02 06:24

    Dear Leon,

    Well, what is a "little bit"? Echos are not 100% the same every time, so you may see deviations of a few milimeters between echos. I would reserve judgement till I knew what the actual numbers were.

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: growing hypertraphy]

    Author: Pat (---.d00832.dlup.digitaldune.net)

    Date: 11-29-02 14:55

    Dear Leon,

    I suspect what you're experiencing is the leading edge of knowledge about HCM. I'm 59. My own experience is that obstruction and hypertrophy can increase through the adult years.

    It's possible I had symptoms as an adolescent as I never much liked competitive sports because I got so short of breath and tired. But the first symptoms I had which I am certain were related to HCM were when I was 39. And they have worsened steadily over the past 20 years.

    When I saw Dr. Shah, a specialist in the field, he first said I didn't have HCM. Now, with all the testing finished, he says I have "atypical HCM with obstruction" or "isolated septal hypertrophy." (The specialists are not agreed yet as to the diagnosis because they haven't seen enough of it yet.) And when I asked him, he was definite that my hypertrophy & obstruction have developed and/or worsened over the past 20 years. Clearly "adult-onset!"

    When Dr. Maron and Lisa revise the book for the second edition I'd not be surprised if this is one of the things which changes. I think we are fortunate to be witnessing the knowledge explosion in this field. Though it IS frustrating that the experts don't know everything we want them to know yet!!!

    Good luck, Leon! And, have you seen a specialist?

    Pat

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    [Re: growing hypertraphy]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 11-30-02 10:40

    Adult onset is a difficult one to deal with as it breaks many rules... It is best to think of things like this... HCM does not KEEP growing and growing... your heart will reach a size and stay there (within a few milimeters).. The point the book is attempting to make is your heart will not continue to grow throughout life.

    Does that clear it up some??

    I spoke to Dr. Popjes in Chicago...glad to hear your in good hands.

    Lisa

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    [Re: growing hypertraphy]

    Author: Roxann (---.client.attbi.com)

    Date: 12-06-02 21:22

    When does the heart stop growing--or thickening, though? My husband was diagnosed at 30-but now at 37 he has had an ICD implanted and has angina all the time--they are trying to regulate with medication--but no luck so far--I don't agree that HCM doesn't keep growing----or maybe I'm wondering when does it stop? Will the heart muscle ever stop thickening--so that some regulation can happen, or is it going to continue to grown? Lisa, above message, says that it doesn't continue to grow in adult onset--I'm confused--that doesn't seem to follow the pattern I have seen with my husband--Any thoughts?

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: growing hypertraphy]

    Author: Sarah B. -Board Moderator (---.dsl.chi.megapath.net)

    Date: 12-08-02 11:07

    Dear Roxann,

    HCM varies profoundly from person to person and there is an exception to every rule. In general, the heart doesn't grow or get thicker once you are an adult. The damage that HCM does can cause some chambers to get bigger, or the hypertrophy to get thicker or in end stage HCM, the whole heart gets bigger b/c the walls thin out, or all three. However, for most people, the hypertrophy reaches a certain place and stops.

    S
    NOTE: This is a post from the previous forum message board.

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