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  • HCM & ICD implant

    [HCM & ICD implant]

    Author: patek (---.tnt13.sfo3.da.uu.net)

    Date: 02-14-02 23:17

    I was just diagnosed with HCM after a treadmill test and an ECHO last week. Most of the males in my family have died of heart attacks, sudden type I think. My Dr. wants to implant a ICD defrbillator next Friday. I don't have any symptoms just the test results and the family history. My questions are:

    1. Is this the correct treatment considering I have no symptoms?

    2. Should they try drug therapy first?

    3. What is the definition of sudden? Does this just mean heart attack/ death in a very short period of time with or without previous heart problems?

    Thanks

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    [Re: HCM & ICD implant]

    Author: Bob (---.dyn.optonline.net)

    Date: 02-15-02 18:17

    Hi Patek,

    I, like you, am scheduled to receive an ICD; a decision I made after much research and consultations with several doctors, so I understand your concern. Sudden Cardiac Death (SCD) is a situation where the heart unexpectedly, and suddenly stops beating (cardiac arrest), breathing ceases and unconsciousness results. It usually is the result of a sudden, abnormal heartbeat (arrhythmia). If the normal heart rhythm can be restored quickly, the person usually survives. That is the purpose of the implanted ICD that you mentioned.

    SCD is a known risk associated with HCM. Unfortunately, establishing who is at High Risk cannot be absolutely determined, rather it is based on statistics from passed cases. Family History of SCD is a significant risk factor, and there are several others as well. Absence of symtoms does not exclude one from the high-risk category (I have no symtoms). It is important that all your medical data be evaluated by an HCM specialist in order to make a decision. For persons determined to be at high-risk for SCD, the implantable ICD seems to be the choice of most experts today.

    I, initially had much uncertainty, as you do. My doctors were very understanding, and encouaged me to seek additional opinions, and make the final decision. If you are not convinced of your doctor's recommendation, I suggest you do the same. There is much info also to be found on the internet.

    Good luck and keep in touch. You're welcome to e-mail me if you wish.

    Bob

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    [Re: HCM & ICD implant]

    Author: NURSE NANCY (---.stphc.com)

    Date: 02-20-02 17:23

    Sudden death is just that ......... you fall over dead of a lethal arhythmia. I work in the pacer and ICD dept. and I am a HOCM pt also. and to prevent early sudden death this is it. Meds are not the answer. Go and stand on the door step and get in line for this device before you get what your brothers got.

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    [Re: HCM & ICD implant]

    Author: beckley (---.dsl.mindspring.com)

    Date: 02-24-02 06:10

    Dear Patek

    What did you decide?

    How are you? Please let us know how you are and what you have decided to do. The HCMA has resources to help you find an HCM specialist in your area, so I hope you have taken advantage of that membership benefit.

    Sarah

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    [Re: HCM & ICD implant]

    Author: patek (---.tnt1.santa-rosa.ca.da.uu.net)

    Date: 02-25-02 11:28

    Thanks for all the helpful information. I had the implant done on Friday and everything is fine. During the EP test the Doctor was able to induce an irregular heart beat that he said showed that it was a really good idea that I had the implant done quickly. I am happy that it is done and I look forward to a little late spring cross country skiing after my 6 week recovery period is up. It is ok with my DR. and I think it will help me with any doubts I have about my physical condition. It is now a few days after my implant and I can't wait to take a real shower. Sponge baths just don't work.

    Put me down as another happy camper.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: HCM & ICD implant]

    Author: beckley (---.dsl.mindspring.com)

    Date: 02-25-02 22:16

    Congratulations!

    Hopefully your defibrillator won't go off --ever, but thankfully you have it.

    There are a lot of people here with implanted defibrillators, so feel free to ask any questions you may have.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: HCM & ICD implant]

    Author: Doug (Patek) (---.tnt1.santa-rosa.ca.da.uu.net)

    Date: 02-28-02 10:32

    Sarah, thanks for your support.

    While I do find myself listening to every heartbeat waiting for a shock I'm sure that this will go away very soon. I'm not an obsessive person by nature so I'm not worried about this.

    I do have some questions about electrical interference and my AICD. I will check with my Dr. next week but I need to do due diligence myself.

    I have read many sites where they discuss things to stay away from and things to be cautious about but my problem is what I do for a living.

    I am an engineering manager for hotels. I was downsized after the events of September 11th and am currently looking for a job. An engineering manager supervises the physical property of a hotel. Hotels, by the nature of the beast, have pumps, motors, transformers, generators and things like that. I am to the point where I don't do much actual work on these things but there might be situations ( emergency or training) where I would need to be hands on.

    One of my cardio Dr. told me that there wasn't anything in a hotel that I should be overly concerned about and that he would write me a letter stating the fact that I was 100% able to due my job. That is fine but still a little checking the facts out is good.

    Are there any specific guidelines that would state exactly the electrical enery levels to avoid or what precautions to take to prevent interference?I know that the electrico-magnetic field surrounding a motor can be measured.

    Also when I was in the Navy I worked in a special where the device I worked on was so sensitive to electro-magnetic radiation the shop area was surrounded by a copper mesh to"catch" any energy and ground it away from the work area. I can't see myself wearing a copper suit but the concept is interesting.

    I am not overly concerned about this problem but I thought that I would ask.

    Any information would be helpful.

    Thanks

    Doug

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    [Re: HCM & ICD implant]

    Author: Gary (---.proxy.aol.com)

    Date: 03-04-02 10:29

    The ICD I had implanted is more or less like having a tint emergency room inside your chest. All surgery is a risk vs. reward option. I was dioagnosed with HCM at 29. I am now 35 and feeling more secure since the implant last year. Although it doesn't relieve symtoms, It does reassure. Good luck and happy days ahead.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: HCM & ICD implant]

    Author: sarah beckley (---.dsl.mindspring.com)

    Date: 03-07-02 02:52

    Dear Doug

    You bring up a very good point. I think that you should talk to the manufacturer about this (I also doubt that the doctor really understood that you are not in a hotel but in and around power plant stuff).

    I'll pass your question on to Lisa, too, since she has an ICD and may know the answer.

    Good luck with the job search (I'm laid off too, as of last Friday!)

    Sarah
    NOTE: This is a post from the previous forum message board.

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