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Hubby back from CC - Yamaguchi syndrome

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  • Hubby back from CC - Yamaguchi syndrome

    [Hubby back from CC - Yamaguchi syndrome]

    Author: Karla (---.proxy.aol.com)

    Date: 11-19-02 03:20

    Hi All,

    Just wanted to let you know that Tom is back from CC.

    Dr. Lever took one look at his EKG and diagnose him as having "Yamaguchi syndrome"....those long, inverted T-waves are the telling sign, I believe. His hypertophy is apical - at the "tip" of his heart.

    I searched the web for info and discoverd that this type of hypertrophy is really rare but follows a more 'benign" course. (Naturally I searched this web site to see if there were others!) From what I have read, the 'risk' with apical hcm is tachycardia...typically, monitoring it will involve heart halter testing on a yearly basis. (Lisa, feel free to jump in here with your 2 cents worth)

    He went through a battery of tests while there. I thought you might find it intereting that he had a " 3-D" echo..they told Tom that this was a new type and he had to sign a consent form to be a case study for it. All tests went well. We are waiting the results of the 48-hr. heart halter he wore while there.

    Dr. Lever changed his meds to Tropol XL .

    We now have peace of mind because we now have some answers from an expert doctor.

    Thanks again, Lisa, for all you do and guiding us in the right direction!

    Karla

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    [Re: Hubby back from CC - Yamaguchi syndrome]

    Author: Board Moderator (Sarah Beckley (---.client.attbi.com)

    Date: 11-19-02 03:33

    Hey,

    What good news! Lisa and I had dinner with Dr. Lever last night, actually. I'll tell him you said "hi"!

    It is great ot be ablle to breathe a little easier, isn't it?

    take care,

    S

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Hubby back from CC - Yamaguchi syndrome]

    Author: Lisa Salberg (167.165.39.---)

    Date: 11-19-02 04:00

    You bring up a good point... I should add a page of alternate diagnosis and the implications of these disorders...

    hmmm...more work...but worth it

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Hubby back from CC - Yamaguchi syndrome]

    Author: Karla (---.proxy.aol.com)

    Date: 11-19-02 13:45

    Sarah - yep, breathing a little easier now..(is that one of your famous puns? LOL) Give our regards to Dr. Lever!

    Lisa - great idea! I have already received a couple of e-mails directly from those wanting to know where I found my info on Apical HCM/Yamaguchi syndrome...but, your'e right....more work...somehow I have an idea you'd handle it though...

    Karla
    NOTE: This is a post from the previous forum message board.

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