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I'll Be Durned


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  • I'll Be Durned

    [I'll Be Durned]

    Author: Frank (---.chicago-08-09rs.il.dial-access.att.net)

    Date: 11-09-02 22:32

    Just visited my doctor and after a good checkup I decided to research a little about HCM.....After reading your comments, guess I am not alone.

    I was a big time football, baseball and track star. For the first 18 years of my life I could run and jump with the best.

    Then had a doctors appt to get my wisdom teeth out and some irregular patterns showed on the ekg and I went to a heart specialist. (This was back in the late 70's), I went to a top cardio doc in Phila and he told me to be careful of things like pushups (putting direct pressure on the chest muscles, he wished me a good life and back to sports I went).

    Flash forward to 1996.....Moved to Brazil and for some reason the hot tropical weather killed me. Shorts walks made me labor to breath, I actually had to tell people to either slow down or stop so I could rest....

    I returned back to the states and made an appt to just get a "back to the U.S return physical". I mentioned that I had a hard time going to sleep becuase of shortness of breath and I had to sleep with 2-3 pillows to prop my head up, to make it comfortable enough to sleep. The dr immediately made a cardio appt and then my life came tumbling down.

    I will never forget the day when this dr informed me that I would have to take daily medicines for the rest of my life. It crushed me...At 40, I could not see myself with a nightstand full of pills.

    Well it's been 3 years since I have been on toporpol (check spelling) and I must say that with this medicine, moderate exercise and a healthy diet I feel pretty decent.

    So,,,,,,,,,,,I understand this HCM is somewhat common is athletes and I advise you younger folks to really pay attention to the physicals that you must take to participate in your chosen sport. If the Dr mentions anything about murmur or sounds strange get it checked out.

    I will jot down some of the things that I do so hopefully you arent in the dark as much as I was.

    1. I walk on a treadmill 4-5 times per week at a pace of 3-4.5mph.

    2. I try to eat 3 meals a day, light breakfast, meduim lunch and a heavy dinner. I am slowly changing to eating a heavier lunch and lighter dinner.

    3. I have cut out all red meats and slowly am giving up breads. No longer drink pop/sodas,,,,,basically water now.

    4. I try to eat before 6 or 7 at night, so I can not tax my system to make my heart work harder trying to burn off the food and fighting to get to sleep. (This has helped a great deal).

    My natural great feeling weight is 200-205, but 1 yr ago I was at 237 and felt terrible and really labored to breath even with the troproyol....But a yr later I'm down to 215 and feel pretty durn good.

    Oh and lastly don't skip your medicine. I travel alot and sometime I forget to take my pills and after 1-2 days I can really feel the labored breathing.

    I never really experienced chest pains so can't address that.

    Well, sorry to have rambled but again, I was surprised to find other out there with HCM. Just let me know if you have any questions an I will gladly answer you.

    I have a great Dr, and I can give you his info if you live in the Chicagoland area.

    P.S, I just moved my family to Charlotte NC and if anyone knows a great heart Dr there, I would appreciate the tip......

    Thanks and ......Hey if there are typos or misspelled words, pretend to correct them and keep on reading. Have a great day people


    [Re: I'll Be Durned]

    Author: Erica Stolzenberg (---.atlnga1.dsl-verizon.net)

    Date: 11-09-02 23:33

    Hi Frank! Isn't it GREAT to know you are not alone? Welcome! I read that you are interested in becoming a member! Great! Contact Lisa, HCMA President!

    Membership information:

    - E-mail [email protected]

    - Include your name and mailing address

    - Mail to: HCMA P.O. Box 306 Hibernia NJ 07842

    - Call: 8am to 8pm Eastern time ONLY please 973-983-7429

    - Annual membership: $25.00 (USA)

    (For $50 you get a book on HCM with membership fee!)

    Lisa can give you names of HCM specialists! I suggest calling her next week!

    Oh ... I don't have HCM (yet) but my father has HOCM (58 yrs old!)

    I wish you well! This board is a great place to learn and share!

    Best wishes and thanks again for sharing! ~ Erica


    [Re: I'll Be Durned]

    Author: Sarah B. -Board Moderator (---.client.attbi.com)

    Date: 11-09-02 23:44

    Dear Frank,

    It can be dangerous to stop taking beta-blockers suddenly, so skipping pills even by accident is not cool. They make all kinds of alarms and watches with pill boxes in them and so on and so forth. Please look into making arrangements to ensure your pills go with you when you travel --perhaps you already have a travel toiletries bag that you always use --just tuck a few pills in there (meds are good for about a year or so) --and then you won't leave without them.



    [Re: I'll Be Durned]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 11-10-02 11:35


    Welcome to the board, we are happy to have you here. It sounds like you are doing well adjusting to life with HCM. Thankyou for sharing your suggestions.

    Best wishes,



    [Re: I'll Be Durned]

    Author: Amy Williams (---.proxy.aol.com)

    Date: 11-11-02 18:00


    Welcome to the club. You had some very good suggestions for feeling good. Like you, if I ate a heavy meal quite late I had trouble trying to sleep...pounding and shortness of breath. I have to say, that I have suffered with that for about 6 years. I assumed that I would just have to live with it. However, My meds were switched a couple of months age...and knock on wood I haven't had that problem since.

    Best Wishes, Amy


    [Re: I'll Be Durned]

    Author: Lisa Salberg (208.47.172.---)

    Date: 11-12-02 11:46

    AMy that is great... and I think others can learn something important from that... just because symptoms change it does not mean we can not fight back with a new approach!

    NOTE: This is a post from the previous forum message board.