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Michael Phillips

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  • Michael Phillips

    [Michael Phillips]

    Author: Elizabeth (---.proxy.aol.com)

    Date: 11-08-02 13:48

    Hi everyone this is Michael's Mother right noiw Michael is not doing very good he has been having chest pain again also his hand's have been cold to the touch has anyone experinced cold hand's?

    If so what does it mean? what do you do for it? Also Michael say's he is tried all the time again tock to him the cardiologist tuesday he does not know what is going on I put a call in to the cardiologist again today waiting for him to get back to me .I guess I will keep on stressing out tell they get back to me .

    Please pray that it is nothing serious.

    Bye Liz

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    [Re: Michael Phillips]

    Author: Lisa Salberg (208.47.172.---)

    Date: 11-08-02 14:39

    Many people with HCM have mentioned cold hands and feet...It appears to have no real significant problems associated with it.

    Re the chest pain you may want to watch what he is eating and encourage small meals as larger ones are very taxing on the system . CHest pain is common in HCM.

    STOP stressing out... it will not help in fact it may hurt. If he sees you getting worked up it may make him more symptomatic. If he is having chest pain have him lay down, get his feet up and get him to relax... and you stay relaxed too...

    All the best,

    Lisa

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    [Re: Michael Phillips]

    Author: Linda (---.wmnsmd.adelphia.net)

    Date: 11-08-02 15:31

    Elizabeth, It is quite common for people taking heart meds to have cold hands and feet. The meds alter the blood circulation to achieve the desired effect on the heart, but as a side effect, many are left with the cold extremities. It's kind of a trade-off for the value of the meds. I don't know if this is Michael's situation, but is a possibilty. Waiting for those return calls can sure take it's toll on you. Hang in there, we'll be waiting for a progress report. Linda, Bd of Directors

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    [Re: Michael Phillips]

    Author: mary sharp (---.net334.fl.sprint-hsd.net)

    Date: 11-08-02 16:10

    I always have cold hands and feet! My roommate actually calls me the ice queen if I touch someone it just sends a chill down them. But I've had this for most of my life my heart meds have actually seemed to help them a bit. When my extremites get cold they also get sweaty, pale, and have a mottled look. Unfortunatly no one has been able to tell me why though.

    It is also one week post ICD and I am doing ok! The staples came out yesterday. Is there normally swelling at the site after that? I know some of the enlargment is from the ICD itself but this area is about the size of a coaster. It is quite a bit sore. I am also curious can the ICD actually make you feel better overall? I was under the impression that it was only to prevent cases of V-fib. But everyone around seems to notice that I am having more energy and seem more into doing things.

    Thanks for the help!

    Mary S.

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    [Re: Michael Phillips]

    Author: john jordan (---.public.lawson.webtv.net)

    Date: 11-08-02 17:02

    hi, elizabeth, i have cold hands and feet all winter and it has already started this fall. i think mine is due to meds, metropolol, i take 50mg twice a day. my nose gets cold also at times. never had this problem til three years ago when i started to deal with hcm. hope this gives u some assistance. john

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    [Re: Michael Phillips]

    Author: Lisa Salberg (208.47.172.---)

    Date: 11-08-02 17:13

    John... I too am a member of the cold nose club... I just thought I was wierd...boy it is nice to know your not alone

    Lisa

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    [Re: Michael Phillips]

    Author: Amanda (---.dsl.dytnoh.ameritech.net)

    Date: 11-08-02 17:34

    lisa and john...i am a member of the cold nose club too. good to know i am not alone.

    amanda

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Michael Phillips]

    Author: Elizabeth (---.proxy.aol.com)

    Date: 11-08-02 21:46

    Thank you for your in put I tock Michael back to the cardiologist today they still don't know what is wrong with him back they ordered alot of blood work on him also they are doing a liver study on him to make sure his liver is working right if something happen's to make Michael worse I am supposed to call asap.Also Michael's temper is only 79 degrees that is the other reason the doctor is worried about him.Iam supposed to call the cardiologist monday to let him know how Michael is doing hopefully he will be feeling better by then .

    Bye Liz

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    [Re: Michael Phillips]

    Author: Linda (---.wmnsmd.adelphia.net)

    Date: 11-08-02 23:06

    Elizabeth, you say Michael's temper - I assume you mean temperature, is only 79, could you be meaning 97? Some people normally run a 97, so really notice a 99 as a fever for them. LInda

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    [Re: Michael Phillips]

    Author: Elizabeth (---.proxy.aol.com)

    Date: 11-09-02 21:10

    Hi everyone you are right Michaels temper is 96 degree's Michael keep"s on saying he is very tried even after he sleep's all night he is even taking nap's has any one else been through this?

    thanks

    Liz

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    [Re: Michael Phillips]

    Author: Sarah B. -Board Moderator (---.client.attbi.com)

    Date: 11-09-02 21:17

    Dear Elizabeth,

    Being exhausted and cold are par for the course. I just had a 4 hour nap and I expect I'll be going back to bed at 11! My hands and feet are always cold and I'm usually around 97 degrees myself. The pilot light just runs a little low in a lot of HCMers.

    I know Michael has some serious issues, but these two are pretty standard for most of us.

    hang in there,

    Sarah

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    [Re: Cold Hands & Feet]

    Author: Dolly W (---.proxy.aol.com)

    Date: 11-10-02 15:07

    Well, I guess I'm a member of the cold hands and feet club myself. My normal temperature is also around 97 degrees. I just thought that there was one more thing wrong with me - I didn't think it could be related to HCM. I guess you learn something new all the time. That's why this site is so wonderful!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cold Hands & Feet]

    Author: Elizabeth (---.proxy.aol.com)

    Date: 11-11-02 15:25

    I spoke with Michael's local cardiologist today he want's Michael back at his office today at 2:00 P.M. to get an echo done to see if there is any change's in his heart the cardiologist say's if there is some change's that could be the problem but he is also worried about some of the blood test that we are waiting for. When we get there they will call the lab for the result's they are also saying they might out Michael in the hospital just to watch him for a couple of day's so know I guess it is going to be a wait and see game for acouple of more hour's .I am vey stressed out but I am not leting Michael see how this is effecting me at all I try my best to act normal and not show how nerves I am on the inside.

    Bye for now Liz

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Cold Hands & Feet]

    Author: Linda, Bd of Directors (---.wmnsmd.adelphia.net)

    Date: 11-11-02 16:18

    Hang in there, Liz. Each day is a new surprise when you realize just how strong you really are. It's so difficult when you have to wait for info. Thinking of you, Linda

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [swelling]

    Author: Greg (208.187.247.---)

    Date: 11-11-02 19:12

    hey there - my first post -

    I was diagnosed with HCM 2 years ago and had an ICD implanted immediately as I was identified as at risk for sudden death - oh the joys : )

    I just heard from my doc that my gradient has gone from 17mmHg (last year) to 50 mmHg - I'm totally asymptomatic but my doc thinks a septal ablation is in my future anyway just needed a spot to tell that to someone . . .

    in regard to your lump mine is just a wee bit smaller than a deck of cards and for the first week or two after surgery there was residual inflamation from the surgery -

    best wishes to you and yours

    Greg

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [swelling]

    Author: Greg (208.187.247.---)

    Date: 11-11-02 19:12

    hey there - my first post -

    I was diagnosed with HCM 2 years ago and had an ICD implanted immediately as I was identified as at risk for sudden death - oh the joys : )

    I just heard from my doc that my gradient has gone from 17mmHg (last year) to 50 mmHg - I'm totally asymptomatic but my doc thinks a septal ablation is in my future anyway just needed a spot to tell that to someone . . .

    in regard to your lump mine is just a wee bit smaller than a deck of cards and for the first week or two after surgery there was residual inflamation from the surgery -

    best wishes to you and yours

    Greg

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: swelling]

    Author: Lisa Salberg (208.47.172.---)

    Date: 11-12-02 11:48

    Greg... you have read this before... Please be sure to have an HCM specialist look at you before moving to a more aggresive procedure...there are meds you can take that may help...before ablations/surgery

    Oh... Welcome to the board...we are happy to have you here!

    Lisa
    NOTE: This is a post from the previous forum message board.

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