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About the Author


JillC RN for over 40 years, MS degree in Respiratory Nursing, Worked surgical open-heart ICU for 18 years in Chicago.. After years of symptoms finally diagnosed with HOCM in 2006. I retired from nursing 2012 due to HCM and had septal myectomy at Local hospital 2013, Redo myectomy Mayo Clinic 2014. Now doing well. Find out more about JillC
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  • Norpace-Podcast

    I myself am not a big podcast person....I seem to keep forgetting to get there on time LOL. However, I just thought I'd bring attention to an upcoming HCMA podcast on NORPACE also known as Disopyramide. Norpace can be a key component of an HCM treatment plan...PARTICULARILY those who have Symptomatic obstruction. Many cardiologists who are NOT HCM specialists are not comfortable with using this drug..... Which means, as a patient, you could lose out on a valuable component to your treatment. It is not a first line drug .... That means that things like beta blockers and calcium channel blockers are used first to relieve symptoms.....However, if the first line drugs become ineffective or have too many side effects often Norpace is used before considering surgical myectomy.
    Look on the website or call HCMA to get details on how to join the podcast. Mark Sherred MD is doing the talk and he IS an excellent HCM specialist. May 25, 2016 12 pm ( not sure of time zone etc.)
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

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