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Best Basic HCM Brochure I've seen....

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About the Author

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JillC RN for over 40 years, MS degree in Respiratory Nursing, Worked surgical open-heart ICU for 18 years in Chicago.. After years of symptoms finally diagnosed with HOCM in 2006. I retired from nursing 2012 due to HCM and had septal myectomy at Local hospital 2013, Redo myectomy Mayo Clinic 2014. Now doing well. Find out more about JillC
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  • Best Basic HCM Brochure I've seen....

    I was doing some HCM googling today and I ran across this brochure from Dr. Charlene Day's HCM center at University of Michigan. For those of you who may not know Dr. Day was elected Physician of the year by the HCMA in 2014.
    This brochure does not go as indepth as the book written by Lisa Salberg and Dr. Marin but it is a great basic introduction to ALL the relevant topics that are part of treating HCM. It has great color pictures and is a printable PDF file.

    http://www.med.umich.edu/cvc/service...m/Brochure.pdf
    Last edited by JillC; 12-30-2014, 08:44 PM.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

  • #2
    Re: Best Basic HCM Brochure I've seen....

    This is a good reference Jill. Thanks for the tip.


    Sent from my iPad using Tapatalk
    Joel

    Born 1955 in USA, DX'd w/HCM 1996, in United Kingdom
    2011, 2013, 2014 ablations for Afib and flutter in UK, INOVA Fairfax, VA, and Johns Hopkins
    June 2014 DX HOCM at Johns Hopkins
    October 2014 Myectomy and Cryomaze at Mayo Clinic

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    • #3
      Re: Best Basic HCM Brochure I've seen....

      This is great Jill, thanks! I've met with Sharlene and Mary & they are wonderful people. Most COE have similar things on their sites, but I've not seen a PDF version and this is really well written and thought out.
      Marc
      Diagnosed @ 48
      Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
      Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
      AICD - Valentines Day '08, Spark Plug replaced 11/14
      After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
      Quietly going insane . . .

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      • #4
        Re: Best Basic HCM Brochure I've seen....

        That's what I thought....especially for new HCMers and easy to understand for families. The 1 slice pictures depicting a septal myectomy are priceless!
        After years of symptoms:
        Officially Diagnosed HOCM 2006
        Myectomy 3/11/13 at non-COE
        Extended Myectomy 7/23/14
        At Mayo with Dr. Joseph Dearani

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        • #5
          Re: Best Basic HCM Brochure I've seen....

          Really good resource, Jill, Thanks for posting it!

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          • #6
            Re: Best Basic HCM Brochure I've seen....

            This is awesome! I am trying to get the word out to family as my husband is the first diagnosed but I feel he is not the only one who has HCM. Thank you for sharing, Jill!
            Megan, wife to Husband, Justin with HOCM
            Husband diagnosed at 37 when taken to ER due to CHF on vacation in San Diego at Pomerado Hospital, March 2014
            Seeing Dr. Salcedo in UC Med Hospital Denver upon diagnosis
            AICD/Pacemaker July 2014 @ UC Med Hospital, Denver with Dr. Nguyen
            Myectomy at Cleveland Clinic October 2014 with Dr. Smedira
            Parents to 3 boys, 11, 8, and 6 all currently clear from recent echos

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            • #7
              Re: Best Basic HCM Brochure I've seen....

              Very informative - thanks for sharing. What is the title of the book written by Lisa Salberg and Dr. Marin? I can't seem to find it

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              • #8
                Re: Best Basic HCM Brochure I've seen....

                A Guide to Hypertrophic Cardiomyopathy for Patients and Families. Barry Marin and Lisa Salberg.
                You can call HCMA or go to Amazon.com
                After years of symptoms:
                Officially Diagnosed HOCM 2006
                Myectomy 3/11/13 at non-COE
                Extended Myectomy 7/23/14
                At Mayo with Dr. Joseph Dearani

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