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Attending this years conference?

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mbcube Birth father died of HCM @ 49, I'm older than that now, Dx @ 48, 3 boys 22, 25, 29 all negative so far, pending future genetics Find out more about mbcube
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  • #16
    Re: Attending this years conference?

    I'm hoping to attend this year. Trying to get plans together. I'd love to meet all of you!
    Sassy Deborah
    Diagnosed with HCM 2001 at age 52
    ICD implanted December 3, 2005
    Finally saw HCM Specialist (Dr Lever) Oct. 24,2008
    Myectomy performed at Cleveland Clinic Dec. 3,2008
    Father died at 26 (1952) suspected HCM

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    • #17
      Re: Attending this years conference?

      My husband and I are thinking about trying to come. We are going to make our final decision after we talk to the ped.cardiologist on March 10.....Can anyone tell me how long the early bird special will be running for?

      Thanks,
      Tiffany Norman
      4 y/o son was dx with Non-obstructed HCM 9/9/08. On propranolol 2x per day
      6 month check up was good no prgression of disease
      went for second opinion at University of Iowa (Dr. Edens) and received same diagnosis. Mild case of HCM
      Started genetic testing on 11/18/2009 and waiting for results


      BE STILL AND KNOW THAT I AM GOD

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      • #18
        Re: Attending this years conference?

        Looks like April 23 - Hope to see you there - Linda

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        • #19
          Re: Attending this years conference?

          thanks Linda!!
          4 y/o son was dx with Non-obstructed HCM 9/9/08. On propranolol 2x per day
          6 month check up was good no prgression of disease
          went for second opinion at University of Iowa (Dr. Edens) and received same diagnosis. Mild case of HCM
          Started genetic testing on 11/18/2009 and waiting for results


          BE STILL AND KNOW THAT I AM GOD

          Comment


          • #20
            Re: Attending this years conference?

            I registered us yesterday. The kids (10 & 8) begged to go so we are going to treat it as a family vacation. After the conference, we are going to spend a couple of days in New York City. Though my husband has been to NY before, it will be a first for the children and me.

            I look forward to seeing you all there.
            Annette w/Zapper, Zipper & Ticker
            Symptomatic 1987, Diagnosed 1999, AICD 2001, 2005
            Myectomy w/valve replacement 8/2007 (36 y/o)

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