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Grey's Anatomy to Feature HCM Patient

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  • #16
    Re: Grey's Anatomy to Feature HCM Patient

    Having lived this life, I can fill you in a little. I had a myectomy in 1981. My obstruction was gone never came back. In 2001 I started in CHF and resulted in end stage HCM. My heart became very stiff and did not have enough umph to push blood out of it. In 2004 I received my transplant. Most people do not go this route with HCM. Less than 4-5% need transplant. It was a story line and we must remember TV is TV not real life.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

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    • #17
      Re: Grey's Anatomy to Feature HCM Patient

      As my husband is now in end-stage HCM, NYHA class I/II heart failure, I'm trying to understand the differences between the two - I spent a long time looking up "regular" HCM for my boys and am now beginning to understand what's going on with his heart...

      Although we're not being referred as of yet for a heart transplant, I'm assuming it's coming up sometime in our (near) future. So, when I saw this, I was like.. wait.. they didn't say my husband could have that!

      So yeah, if this guy had DCM like poor Denny, then it wouldn't be too interesting since that disease had already been around.. They needed a new interesting cardiac disease to dramatize. LOL!

      Thank you all for taking the time to respond!
      Marki (34) mom to: Quest (15) positive HCM, Zak (10) HCM, waiting on a new heart for 14 months now, Sutton (7) gene negative, and MJ (2) no HCM. Wife to Michael (35). ***Remembering Priscilla (passed on October 31, 1999 @ 33 yrs old), Janice (passed on September 1, 1974 @ 16 yrs old) and Shirley (passed on October 23, 1995 @ 58 yrs old).*** All were from HCM.

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