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Kids? HCM Mtg in NJ in May

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  • Kids? HCM Mtg in NJ in May

    Hi there,
    Just wondering about the annual meeting at the end of May.... I noticed on the registration form that it asked number and ages of children if attending.

    What is there, if anything, for kids to do there?

    Thanks!
    Theresa
    email: [email protected]
    Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

  • #2
    Re: Kids? HCM Mtg in NJ in May

    Theresa - I think that is so they can make appropriate babysitting arrangements as usually there are a few teenagers/young adults who hang out with the kids and sometimes take them to see movies at the theatre next door to the hotel.
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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    • #3
      Re: Kids? HCM Mtg in NJ in May

      HCMA meeting always provide child care! We have lots of activities planned that are age appropriate - there is a swimming pool, movies and other activities - however for the littler ones we have a suite they can nap in, room to play in and lots of teens to keep them busy all day with!
      Remember HCM is a family matter!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: Kids? HCM Mtg in NJ in May

        Thanks much.

        We're 'this' close to booking our airline tickets and registering for the conference.....


        Theresa
        Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

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        • #5
          Re: Kids? HCM Mtg in NJ in May

          You should! My daughter and I are planning on attending and there will be loads of people who you will recognize from the message board, plus some who don't participate on the board.
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

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          • #6
            Re: Kids? HCM Mtg in NJ in May

            Last year was my first meeting, and there were lots of kids and activities. This year we are bringing Emily, aged 15. She has had a year to digest having HCM among other medical issues related to some still un-diagnosed metabolic disorder. She looks forward to interacting with other HCMA-ers. She also is an accomplished baby-sitter, loves little kids, and I suspect will probably be hanging out with the little kids most of the time.

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            • #7
              Re: Kids? HCM Mtg in NJ in May

              I am happy to finally say.....

              Andrew and I will see you all there!!!! Can't wait to meet so many of our HCM family and get to hug necks of those who have offered support, answers to questions, and prayers... since I first logged on about two and a half years ago!

              See you soon!
              Theresa
              Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

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              • #8
                Re: Kids? HCM Mtg in NJ in May

                I'm glad to hear that! I know you'll be awed by the way you will bond with those who are in attendance. You'll also learn so much from the top specialists in the country. I hope to see you there!
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

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