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Dolly W Find out more about Dolly W
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  • I'm Back!

    Hello Everyone!

    I haven't been on the forum since right before Katrina. My name is Dolly W and I live in St. Bernard Parish, on the outskirts of New Orleans. I was in NOLA during/after the storm, at a Nursing Home where I worked as the Dietary Manager. It was a pretty wild experience - one I hope to never have again.

    Anywho - since I have limited access to internet, it has been difficult to do anything other than receive mail. However, I will try to keep up as much as possible.

    I had a myectomy at Mayo 10/02, and recently had a Medronic ICD implanted 10/07. No problems with the ICD, although I did freak out when they told me that I would not be able to drive for six months! The MD said - "no restrictions", and I was driving four days after the procedure!

    Things have been going pretty well since the myectomy and the ICD. I'm mostly having difficulty with chronic CHF. It might help if I would remember to take my diuretic on a regular basis (working two jobs may also have something to do with it). I finally had to swallow my pride and buy one of those little pill box thingys that reminds me of the elderly, whom I so dearly love and adore.

    So, here's hoping everyone has a happy, healthy holiday!
    HOCM, Septal Myectomy 10/02 (Mayo Clinic), Medtronic ICD 10/07, TIA 10/07

  • #2
    Re: I'm Back!

    Dolly - I am so happy to hear from you! I have thought of you often since Katrina, and have wondered how I might contact you.

    I know how difficult things are down there for everyone, forget those who have a chronic health problem. I am just grateful to hear that you are doing ok.

    I will send you a pm so we can catch up!

    Great to have you back.

    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


    • #3
      Re: I'm Back!

      Welcome back Dolly.

      God Squad co-moderator
      Nothing is as gentle as strength and nothing is as strong as gentleness


      • #4
        Re: I'm Back!


        Nice to see you back.


        • #5
          Re: I'm Back!

          Welcome back Dolly nice to hear from you again

          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


          • #6
            Re: I'm Back!

            Dolly I was hoping you would find your way back to us! I have been worried about you. Thank you for letting us know you are OK and please know I was thinking of you during those dark day of Katrina - my best to you, your family and your neighbors.

            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)