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80s Party in NYC to support HCMA


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  • 80s Party in NYC to support HCMA

    Hi everyone,

    Recently my brother was diagnosed with HCM. He is 22 years old and just graduated from college (going to grad school at MIT next year). When we first discovered that my brother had HCM this website was really useful/helpful.

    I live in NYC and am planning an 80s themed boat cruise around the city on August 11, 2005. I plan on donating any profit from the cruise to the HCMA, which was so helpful for my family. (Originally all the profit was going to go towards the NYJL, a volunteer group where I am a member).

    I also hope to educate people about HCM. Until a month ago, I'd never heard of HCM and had no clue that someone in my family could be affected. While the news was at first upsetting, thinking about it now, my family is so thankful that we found that he has it. We orignially planned to play tennis and other sports with my brother this summer--basically do things that could have hurt him really badly. My goal now is to help spread awareness of HCM to prevent families like mine (who have no idea they could carry the gene) from finding out about HCM the hard way.

    Anyway, I just wanted to invite any of you who happen to be in the NYC area, and/or any friends to the boat cruise. The website is


    It should be a lot of fun and I'm hoping we have a large turnout so I can raise some money for the HCMA.

    I hope to see some of you there!


  • #2
    Erin, that's a great idea! I wish I were in the area to attend. I hope you have a great turnout!


    PS: Welcome!

    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Dear Erin,

      What a great thing you are doing! I wish I was going to be there. Best of luck with it.

      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


      • #4
        What a great idea
        Unfortunately I no longer live in the eastern part of the US and I don't know anyone from NY.

        I hope your venture is a success.


        • #5
          What a great sister you are!!!!

          Thank you for all your support, too. Your family and friends are fortunate to have such a compassionate person in their circle.

          Go forth and prosper the world with information about HCM. Let us know how we can support you in your quest. I know that Lisa has tons of materials and posters and fliers that will help you get the word out. Call the office (if you haven't already) and Kelly will set you up!

          I hope we get a report of all your travels, too.
          Good luck!

          Sharon Bates



          • #6
            Erin, Thank you for your support and I wish you great success! Your brother is fortunate to have such a great family. Linda


            • #7
              Erin thats awsome.I loved the 80s ps. wish I could go back.Im going to see if my wife wants to go.
              One day at a time.


              • #8

                that is just great what you are doing, I live in Va and can't be there have fun and hope you do well

                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


                Today's Birthdays