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Hi everyone,
Recently my brother was diagnosed with HCM. He is 22 years old and just graduated from college (going to grad school at MIT next year). When we first discovered that my brother had HCM this website was really useful/helpful.
I live in NYC and am planning an 80s themed boat cruise around the city on August 11, 2005. I plan on donating any profit from the cruise to the HCMA, which was so helpful for my family. (Originally all the profit was going to go towards the NYJL, a volunteer group where I am a member).
I also hope to educate people about HCM. Until a month ago, I'd never heard of HCM and had no clue that someone in my family could be affected. While the news was at first upsetting, thinking about it now, my family is so thankful that we found that he has it. We orignially planned to play tennis and other sports with my brother this summer--basically do things that could have hurt him really badly. My goal now is to help spread awareness of HCM to prevent families like mine (who have no idea they could carry the gene) from finding out about HCM the hard way.
Anyway, I just wanted to invite any of you who happen to be in the NYC area, and/or any friends to the boat cruise. The website is
www.ogghelp.com/80sparty
It should be a lot of fun and I'm hoping we have a large turnout so I can raise some money for the HCMA.
I hope to see some of you there!
Erin
Recently my brother was diagnosed with HCM. He is 22 years old and just graduated from college (going to grad school at MIT next year). When we first discovered that my brother had HCM this website was really useful/helpful.
I live in NYC and am planning an 80s themed boat cruise around the city on August 11, 2005. I plan on donating any profit from the cruise to the HCMA, which was so helpful for my family. (Originally all the profit was going to go towards the NYJL, a volunteer group where I am a member).
I also hope to educate people about HCM. Until a month ago, I'd never heard of HCM and had no clue that someone in my family could be affected. While the news was at first upsetting, thinking about it now, my family is so thankful that we found that he has it. We orignially planned to play tennis and other sports with my brother this summer--basically do things that could have hurt him really badly. My goal now is to help spread awareness of HCM to prevent families like mine (who have no idea they could carry the gene) from finding out about HCM the hard way.
Anyway, I just wanted to invite any of you who happen to be in the NYC area, and/or any friends to the boat cruise. The website is
www.ogghelp.com/80sparty
It should be a lot of fun and I'm hoping we have a large turnout so I can raise some money for the HCMA.
I hope to see some of you there!
Erin
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