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Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Dear Mary,
I hope you have a wonderful birthday and a year that is full of answers and help for your health, finances, schooling, and all. (June 12 is also my sister's 60th birthday.) --Lisa Inman
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Thanks everyone. You're support for everything is amazing. I'm not quite sure what I'm gonna do today. But, I'll be surronded by my friends and that is the best gift i could ever ask for
49 yrs. old
Diagnosed at 31.
Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
My brother passed away suddenly at 34 yrs old from HCM.
2 teenage children, ages 17 and 15.
Today was a great day! I hung out with friends and had a lot of fun. Then I got a call from a long lost cousin to wish me happy birthday. She had run into some money and wanted to give me a present. So she wired me $500! It was sooooo awesome! I didn't expect that at all. Now I can pay my car and get my medicines!
Wishing you the best birthday ever and the best of everything always!
(okay I'm not great with all of the pics and things so imagine I sent you fireworks with them exploding "happy birthday" and you favorite band singing your favorite song at the same time!)
John
41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005
Tweet
especially with the recent transplant news
Comment