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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05
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  • Interview


    Wish me luck! I have a very important interview tomorrow. It is for an assistant position in the neurodignostics lab at the hospital I currently work at. I'm looking forward to getting this job because I get to do both: help people and easy my overworked heart. Most of my requirements would be computer based.

    School has also started today. I think this Algebra class may give me an anurysm this semester. Man I hate math. But, the professor seems good and was very understanding about my HCM so hopefully it will be a good year.

    Thanks for the support!

    Mary S.

  • #2
    hey, good luck Mary.

    You will do fine.

    All the best,
    NEMC's (Boston) First Myectomy 7-22-2003


    • #3
      Best of luck, Mary, Linda


      • #4
        Good Luck Mary - and if I have been remiss in reminding you lately...

        Big hugs!
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Good luck, kiddo!


          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.


          • #6

            I just got back from the interview. I could not have expected it to have gone any better. The director seemed really enthused about my talents and what I could contribute. There are four other people going for the job. So, I am going to write a very nice thank you letter and try to get some brownie points. I will not know until next week but I think it looks pretty good.

            Mary S.


            • #7

              I'm so happy for you and a thank you note these days goes a long way, i will keep a finger crossed for you ok

              Diagnosed 2003
              Myectomy 2-23-2004
              Husband: Ken
              Son: John diagnosed 2004
              Daughter: Janet (free of HCM)

              Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


              • #8
                Still keeping fingers crossed here too.


                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.


                • #9
                  Hey Mary,

                  I didn't get on yesterday, so I didn't get to wish you luck.

                  Glad to here the interview went so well, and I will keep my fingers crossed for you.

                  Good luck w/the algebra, too... I know I would need it, also!



                  • #10
                    Mary hon,
                    I not only got my fingers crossed, I have my eyes crossed too – and the way things are at the moment, I’ve got my legs crossed also.

                    I’d have talked with you more, but I’m a bit busy of late. Saw my PCP yesterday and turned over the fight with the ins. Pharmacy to her – I’m just fed up with them and will not fight any further. Instead of giving me the insulin I need they want to cut it below one third my requirement. If she can’t get it for me I’ll just stop taking the insulin.

                    This morning I left the house at eight thirty and drove about two towns away to see my surgeon. He is going to build a fistula in my arm tomorrow. From there we drove to the hospital to pre-register, and run the tests they ordered. Got out of there at three thirty and drove to a pharmacy to get the special soap I have to bath with tonight and tomorrow morning. The car service will pick me up tomorrow at four thirty and I have to be showered and dressed. The procedure is at seven thirty and I should get out of there around ten, and home by eleven.

                    Thursday I have a part time job interview. If it is a desk job I might be interested, but if it is not, I will have to blow it off. Then comes Friday – lunch with friends, then bridge. Friday night my son will be driving out to visit again, and should get here for Saturday breakfast, and stay for the week-end. I didn’t take my scooter today and I’m ready to collapse.

                    You must be gearing up for an equally interesting time with school and a job. Tell me, did you ever get the prescription for the patches? – or a stop-gap substitute? Anyway hon, keep your chin up – it’s harder to tag you with an uppercut.


                    • #11
                      Boy, Burt you sure are an over achiever! Anyhow, on the insulin you better not quit taking it. That would not be good. Don't make me come out there.

                      School, seems acceptable for now and if I get this job I think it will be something I could handle!

                      Good, luck tomorow!



                      • #12

                        The job is yours, I can feel it...

                        The Best Of Luck

                        " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


                        • #13
                          Burt, good luck with the fistula. Keep us posted, Linda


                          • #14
                            Mary ,

                            Keeping positive thoughts for you . Got a feeling sunshine is coming your way.


                            Burt take it easy, remember to put plenty of warm soaks on that fistula as soon as allowed , that will help the area heal and get it to grow faster so those large boare needles slide in easier when the time to use it comes and keeps the scare tissue from frequent use to a minimum.

                            Dx @ 47 with HOCM & HF:11/00
                            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                            Lead failure,replaced 12/06.
                            SF lead recall:07,extracted leads and new device 2012
                            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                            Genetic mutation 4/09, mother(d), brother, son, gene+
                            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                            • #15
                              Hi friends,
                              I know this is Mary’s thread, but just let me respond to your kind remarks.

                              I had the procedure today. They entered via the crease at the inside of the elbow, and they glued me back together. No water on it for 48 hours, then I can shower quickly and pat it dry carefully. Right now it is swollen and sore, and difficult to flex. My bicep is sore (that’s where they put it) and the hematoma at the incision is as wide as my arm and ten inches to a foot up and down.

                              I was fine in the hospital, but getting out of the cab I came very close to passing out and had to be helped into the house. It was very rocky for a few hours, but after a good nap things settled down – except for some occasional angina. I can drive again tomorrow and will have the prescription for Percocet 75/500 filled. I also need a rubber ball to squeeze. They expect the hematoma and pain to subside in about a week, and the fistula to be ready for dialysis in six to eight weeks.

                              Thank you for your concern. I really do appreciate it.
                              Love you all - Burt


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