If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

For Lori


About the Author


Lisa Salberg Find out more about Lisa Salberg
  • Filter
  • Time
  • Show
Clear All
new posts

  • For Lori

    Happy Birthday to my sister.
    She is not here to blow out candles on a cake.

    The last birthday we shared together was 10 years ago.
    It is amazing to me that it has been 10 years.
    So much has happened - but the pain of her death is still so raw.

    Lori loved the strangest foods - - her favorite birthday cake was white cake, pinnapple filling and marzipan frosting.

    In honor of Lori's birthday the HCMA gives you all a gift.
    With the help of Tim Stewart, Kelly DeRosa and our moderators the website has been updated and the message board has some added areas.

    I wish you all could have known Lori - you really would have loved her and she would have loved having you all to talk to.

    I am going to ask you each a favor -- in honor of Lori's birthday please commit a random act of kindness. During her life Lori was very kind to others, in her death she was an organ donor and gave life to 3 who surely would have died with out this gift. If you have not already done so please sign an organ donor card and share you wishes with your family to be an organ donor - while we can not give our hearts there is much else we can give to help others.

    God bless Lori and may she continue to watch over us all.

    Happy January 9 Lori

    your little sister
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Happy Birthday Lori!

    May your life continue to bless people!

    Thanks, Lisa, and all for the thousands of ways you help us all!!!



    • #3
      Happy Birthday Lori

      Your sister has done a fantastic job in keeping your memory alive

      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


      • #4
        Happy Birthday, Lori

        What a team you and Lisa would have been to inform and help others with the same heart disease.

        I didn't know you, but I'm sure you were as comforting and helpful as Lisa.

        You are in heaven with my son, Michael.

        God Bless


        • #5
          Happy Birthday to Lori,

          You will always be remembered. I am thankfull that even though you had to leave, we have all been helped and kept together in a big family that you will always be a part of. God bless Lori.

          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


          • #6
            Happy Birthday, Lori!

            You are truly missed and greatly honored by the great works of the HCMA, your little sister, Lisa, and all the wonderful souls that make the HCMA a wonderful place to learn, to grow, to mourn, to laugh, to cry and most importantly to find new ways to live!

            Blessings to Lori in heaven as we are blessed here on earth from her life that continues to touch so many!


            • #7
              Today is a special day to share special memories of Lori. She told me once how fortunate she felt to have 2 wonderful children. She knew how serious her heart condition was, but she wouldn't change one thing about her life. She said, "It's been a pretty good life, even with all of this".

              I saw her as such a kind, gentle, and easy-going person. I can still see her just smile, shake her head, and chuckle a little at someone who would be getting so excited and dramatic at whatever little thing.

              Happy Birthday, Lori - Linda


              • #8

                I will commit the random act of kindness for Lori, in memory of her. I will do it tomorrow!

                This is the most wonderful site, and, I think, such a special tribute to her, that just keeps going and going.

                The gift of this website, and the HCMA, to all of us, and anyone who wants to visit, is just so immense.

                Thank you Lisa, and also, Lori, for the gift of knowledge, hope, and new friends that the HCMA has brought.



                • #9
                  Happy Birthday Lori,

                  Thank you for sending us an angel(Lisa) to help guide us. The difference you both have made in so many lives in unmeasurable. You shall never be forgotten.

                  Both within the family and without,
                  our sisters hold up our mirrors:
                  Our images of who we are,
                  and of who we can dare to become.

                  -Elizabeth Fishel

                  It's not what you gather, but what you scatter that tells what kind of life you have lived.

                  Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.


                  Today's Birthdays