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  • #16
    Merry Christmas to Everyone!!



    And Peace to All



    And thank you for this wonderful, supportive and informative website. I don't know what I would do without it. A sincere thank you.
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.

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    • #17
      I hope everyone had a joyous Christmas. I am so thankful to be able to look back and say, "I made it!"

      I'd like to thank you all for being so helpful and there to listen when I need time to talk.

      I'd especially like to thank Lisa for helping me to understand my heart condition is not as rare as I had thought.

      I pray for each and everyone here to find comfort and happiness in the years to come. You then can join me when I say, "I made it". So much depends on your state of mind.

      Although I have not met anyone of you in person, I do feel you nearby. I do believe us with HCM have a connection other than heart disease.

      Many of us have large hearts because of our condition. I think ours are large because is filled with compassion and understanding. Some have been there, done that and can share their experience.

      God Bless
      Esther

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      • #18
        Here I sit at work on Sunday morning thinking how unlucky I am that I have to work. But as I think about it, I'm really very lucky. Last year at this time I didn't know for sure if I would be around to see another Christmas. With the support from this terrific web site and a little help from some great people at the Cleveland Clinic, " I'M HERE " for another year.

        Now that I got that out, I hope everybody had a wonderful Christmas and are going to have a Happy New Year



        Tigger1
        " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

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        • #19
          I do like to take a moment and look back at the year. There are so many of you that really turned corners this year! I am proud of so many of you for all you have been though and the way you each fought to maintain your health, your sense of humors and your life!

          Much love to all,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #20
            Happy New Year!

            I want to wish everyone a very healthy and happy new year!
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson

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            • #21
              Just in case I am indisposed at the time, I would like to take this opportunity to wish everyone a Happy Easter, A Happy Passover, and a safe and sane Fourth of July.

              For those planning marriage during this period – May all your troubles be little ones – but not too soon.

              For those planning divorce during this period – May you find a way to bury the hatchet – but not in each other’s heads.

              For those planning to be rid of me for six months – lots of luck, but no way. Just covering the bases.
              Burt

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