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HCMA Meeting


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JoeNJ31 Find out more about JoeNJ31
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  • HCMA Meeting

    Since I just learned I had HCM this past November and I had the ICD Implant procedure three weeks ago, it's seemed like a whirlwind experience that has altered my life completely. Would the HCMA meeting be something I can benefit from or not..?

  • #2
    Re: HCMA Meeting

    OH... a thousand, billion, percent YES! You will not regret it one moment and also get to meet everyone who attends and even have casual face to face time with some pretty famous expert HCM knowledgeable doctors.

    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


    • #3
      Re: HCMA Meeting

      I went to my first HCMA meeting (this year will be my third) just two weeks after discovering that my 14 year-old daughter had HCM. I was not well prepared but found that the informational sections were excellent. It was like trying to drink from a firehose but I learned an enormous amount. More importantly, I learned that most people live normal lives with this disease. Also, I really learned to enjoy people who value their lives. It's a big commitment of time and money but you won't regret going. See you there.


      • #4
        Re: HCMA Meeting

        It is defnitely very worthwhile and like others have said you get to meet so many people that are in your situation.

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.


        • #5
          Re: HCMA Meeting

          Yes, you'll learn a lot, both from the talks and from meeting people.

          Myectomy on Feb. 5, 2007.


          • #6
            Re: HCMA Meeting

            I attending my first last year. Learned a ton, met some of the nicest and most inspiring people. I interviewed my future HCM doctors in a relaxed setting, over drinks, fully clothed.
            This year I will go again, I've earned some additional flags to wear on my registration pin that I'm proud to show off. I do hope to see those I met last year and eager to meet more & learn more.
            Diagnosed @ 48
            Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
            Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
            AICD - Valentines Day '08, Spark Plug replaced 11/14
            After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
            Quietly going insane . . .