7 year old

[Deborah H. Atria Find all posts View Profile Close Deborah H.]

We just returned from my 7 yr old's first stress test. She went a few minutes and then was tired. The Dr. didn't have much advise, only that she could play and go back to taking gym in school, not to worry about heat or diet, etc. Just no competitive sports. Her case is non-obstructed so no gradient was mentioned. The Dr. did however, say her septum was 20 mm, not the 7-8 I thought he told me at the time of diagnosis. He said that the 7-8 mm number was what was "normal" for her age. So we do nothing (except worry) for the next three months, when he wants another echo. Anyone have a similar experience or advise? I am out here on faith alone.
Deborah

[Stuart Schwartz Red Heart Find all posts View Profile Close Stuart Schwartz]

Deborah,

Welcome to the board. I see you just joined us a few weeks ago.
Have you spoke with Lisa. You should call the HCMA office at the phone # at the bottom of the page. I know Lisa can answer your questions & she probably will have a couple questions for you.

You'll see it many times on this message board, "talk to Lisa".

Stuart

[Linda Super Moderator Find all posts View Profile Close Linda]

Deborah,

Stuart is so right, if you haven't yet had the chance to speak with Lisa, please try to do so. The message board is great for networking and support, but for individualized information, you really need to talk one on one with Lisa. You won't be getting medical advice, but rather, information that will help you go about getting the care your daughter needs. Best wishes,

Linda

[Laoshur Member of 1000 Post Club! Find all posts View Profile Close Laoshur]

Hi, Deborah,

No advise, just a comment that may encourage you.

I live in Beijing most of the year and frequently see new adoptive parents and adoptees around town. Every time I do, I smile with satisfaction because I know your child, and all those others, will receive love and care and bring joy to the parents. Of course you are worried right now. But remember that if your child had stayed in China, she would almost certainly not be having stress tests and medical care for her problem. You have chosen and been chosen for a great task - to help this child live as normal and happy life as possible. Congratulations and God bless each one of you in your family!

Rhoda

[Sarah Brave Heart Find all posts View Profile Close Sarah]

20mm is pretty thick. I would think about taking her to a specialist as HCM is a complicated disease.

As suggested, talking to Lisa is the best way to get started down this road and to know what to ask the doctor and how to proceed.

You should ask the doctor's office for copies of the stress test report, all her bloodwork, and copies of all tests, and ecgs. Lisa can explain them in English.

Good luck,

S

[crisferreira Junior Contributor Find all posts View Profile Close crisferreira]

Hello Deborah,

I have a 7 year old daughter too, and her septum measure is about 19 mm. Her Gradient is about 20mm Hg.
She will have her first stress test in the last week of August.

I understand your worry´s, I really do.

Cristina