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Reading Defibulator

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Janet McClure Single mother to two amazing kids. James is 13 and has HCM. Emily is 11 and recovering from TBI. Find out more about Janet McClure
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  • Reading Defibulator

    I am still waiting to hear from my son in Missouri but I had a question about reading his defibulator. Once a defibulator is read by a Medtronic Technician, is that information they read gone. If they read it there in Missouri, when he gets home would the tech here in Georgia be able to see the same events. I didn't know if the data is stored from the time it is put in or everytime it is read is it wiped out.

    With me not being with him I am afraid they will not get the print out and then the doctors here may not be able to see what exactly happened. I am just trying to understand how it works when it is read.

    Thanks for the info!! Janet
    My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

  • #2
    It should be held in the memory - however it can be cleared. Make sure you get a print out of the event.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      ICD tech don't seem to mind requests for a copy of the printout. They'll run another printout for you and it only takes a few seconds.

      Best wishes--I know this must be *hard*!!!

      Rob
      --Living life on the edge .. of a continent!
      Charter member: Tinman Club

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      • #4
        I always ask the tech (whoever is reading it) to print an extra copy for me to save....because they seem to almost always clear my memory...
        ~Wendy~
        Wife to Robert
        Mom to Sara (almost 16mths)


        Hypotrophic Cardiomyopathy with ICD placement

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