Hi everyone... My partner was diagnosed with HOCM three years ago and is waiting for a myectomy. We have a three year old daughter who was born with a heart murmur which went away around a month after she was born doctors have listened to her heart at her checkups and say everything sounds fine. My question is when should she be screened the cardiologist suggests when she is five unless she displays symptoms. However, my sister in laws children (she also has the condtion) arre not being screened until 11 or 12. I am so worried about my daughter...should i be letting her run around and jump about(may sound silly but Im so worried about SCD) I just dont know what she should be allowed to do... I know its a 50;50 chance or her having HCM but should I still play it safe and limit what she does...very difficult to do as anyone with a three year old will know
Thank you in advance for any advice.

Thank you in advance for any advice.
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