Myectomy/alchol septal albation bpm question

[scottonbike Major Contributor Find all posts View Profile Close scottonbike]

Hello again

Recently I have heard that if you have had a myectomy you need to keep the heart rate under 110 for the duration of your life. I am sure that each person is taken on a case by case basis and that number may go up or down for various reasons.

My question, is that if you have had a septal albation do you have the same sort of constraints?

Scott

er, not so much on a bike anymore, more on a golf cart.

[Laoshur Member of 1000 Post Club! Find all posts View Profile Close Laoshur]

I also want to ask about this. The first post that was made about this said that everyone who had HCM should stay below 110, but now everyone seems to be relating this to myectomies. Can someone check their notes from the meeting and clarify this.

Rhoda

[Toogoofy317 Member of 1000 Post Club! Find all posts View Profile Close Toogoofy317]

when I went through cardiac rehab they told me to figure out my target heart rate. Which is 200 minus your age. Then take 80% of that. Then they said to drop it around another 20% more because of the heart. So, we got a target rate of about 135 with a max of 140.

This worked well for me because I got that high walking 3.0 mph with a zero gradient.

I'm non obstructed so it may be different for obstructed

Mary S

[Stuart Schwartz Red Heart Find all posts View Profile Close Stuart Schwartz]

We may need a clarification from Lisa.

Keeping you heart rate down and not lifting heavy weight is, as I understand it, for all HCM patients not just those of us that have had myectomys.

The thinking is that the heart is a mussel and working mussel is how you enlarge or thicken it. With that in mind, why would this be only for myectomy patients? Thickened heart mussel is our entire problem.

Dr Lever is the one that mentioned it at the meeting & it was agreed by the other doctors there. I believe that on the message board it has come from Dr Lever’s myectomy patients (I being one).

Stuart
myectomy 8-31-04

[mtlieb Brave Heart Find all posts View Profile Close mtlieb]

Ditto to Stuart's post...

I'm a patient of Dr. Lever's also, and have explicit instructions (in writing no less) to keep my heartrate under 110 bpm. That's no problem of course because with my beta blockers I can't get my heartrate anywhere near that anyway. I'm also under a 10 pound lifting restriction (still) and my docs show no signs of letting up on that restriction any time soon.

I had thought that these rules were different for everybody and mine were set based on my specific case, but it sounds like the other docs at the conference were in agreement as well. As Stuart suggested, I believe the clarification we require is whether or not these guidelines apply to all HCM'ers, or just those who are post-procedure, be it myectomy or ablation.

Jim

[Tigger1 Barely Heart Find all posts View Profile Close Tigger1]

When I went thru cardiac rehab last year, my limit was set at 130. The closest I ever got was 128 on a tread-mill. The nurses shut me down at that point. I was never really given a weight limit after rehab was complete (12 weeks). I was just told no heavy weight lifting.

I'm going to check next week when I'm up at CCF...


Tigger1

[mtlieb Brave Heart Find all posts View Profile Close mtlieb]

When I went thru cardiac rehab last year, my limit was set at 130. The closest I ever got was 128 on a tread-mill. The nurses shut me down at that point. I was never really given a weight limit after rehab was complete (12 weeks). I was just told no heavy weight lifting. I'm going to check next week when I'm up at CCF...

Thanks Tigger... that will be most helpful. To be honest, I am a bit confused by all of this. I have thought that for the most part I had a great recovery from the myectomy, but nonetheless I continue to be under strict limitations regarding heartrate and weight lifting. I'll be very interested in hearing what Dr. Lever has to tell you on this matter. Please be sure to post back to us.

Jim

[Pam Alexson Moderator Find all posts View Profile Close Pam Alexson]

I think we are overlooking the dissaray of the cardiac cell make-up of our hearts. Higher rates and burst activities can lead to chaos and consequencailly an arrythmia can develope ( sometimes fatal). Some of us have defibrilators ( albeit flawed and soon to be removed; some of you do not)

Don't forget to factor this in.

Pam