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Another newbie question


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Deborah H. Find out more about Deborah H.
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  • Another newbie question

    We are still scheduled for a stress test on Monday. Does anyone know the "normal" septum measurement of a 7 yr. old girl, weighing 48 pounds?
    Has anyone heard of connection between HCM and other birth defects, i.e. cleft palate? I love this site, the questions just keep coming and all of you sound so knowledgeable and concerned. Many thanks.
    Deborah H.
    Daughter 12, Chinese adoptee, diagnosed April, 2005- ICD 2008

  • #2
    There are no connections to "birth defects", there are connections to other disorders, such as Noonans syndrome.
    Regarding your daughters spetal measurement, normal is based on several factors one of which is 'body mass index'. I am not great at doing the calculations but the doctor will know what "normal" should be for her age and weight.

    Best of luck on the exam!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Hi Deborah,

      The range of normal values will appear on the echo report along with the measured value for septal wall thickness.

      Acknowledging that Lisa has advised that range varies based-on age and body mass index, I can tell you that the range given for our 6-year old (who is like her parents and pretty tall, >98th percentile in height) is 0.7 to 1.2 cm.

      Good luck to all!

      --Living life on the edge .. of a continent!
      Charter member: Tinman Club


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