If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Short Circuit Defibrillator

Collapse

About the Author

Collapse

Sharon Binder Find out more about Sharon Binder
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Short Circuit Defibrillator

    Hi - read an article in Orange County Register, 5/25/05, regarding flawed defibrillator. Originated with NY Times by Barry Meier. Very interesting - seems Guidant Corp. didn't tell doctors or patients for 3 years that defibrillator has flaw that causes it to short circuit. When Medtronics received fewer complaints regarding a battery that drained too quickly, they notified doctors of problems. Dr. Barry Maron was quoted in the article. Hopefully you can access the article at Orange County Register, California, website, article "Flaw in heart device kept from doctors". If not the OC Register, maybe the NY Times but I don't know the exact title of their article. Looking forward to seeing some of you at the Convention. I'm really looking forward to attending my first one. Sharon Binder

  • #2
    Sharon, Looking forward to seeing you too.

    There are a few other threads on this topic. The situation has lead to some very tragic consequences. I pray for strength for the family and friends. Linda

    Comment


    • #3
      already posted

      Lisa posted the story here:
      http://forum.4hcm.org/viewtopic.php?...hlight=guidant

      Comment


      • #4
        Explaining what HCM really is

        Thanks - I just read all the info on our site - very interesting and very scary. I'm glad I have an open discussion policy with my cardiologists. I was recently hospitalized and had my pacemaker checked. The Medtronic rep was also there and he was explaining to another rep what the cardiologist was testing and what results they were looking for. Then he proceeded to discuss "IHSS", what it was and its symptoms. I decided then and there to give both reps a lesson - It's now called HCM and his description of the disease was incorrect. When I had finished my explanation, the cardiologist congratulated me on a job well done. See you all soon.

        Comment


        • #5
          I am at turns delighted and dismayed to be educating medical professionals about HCM. I wouldn't have minded educating sales reps, but when the cardiologist on call in the ER you are visiting tells you (in 2002, no less) that chest pain is not a symptom of HCM, it is a pain in the neck.

          My husband once asked about Lanoxin in front of the doctor suggesting it, and the entire entourage of grand rounds plus some big shot visiting MD PhD. I gave him the history, chemistry, typical uses and side effects of it whle the doctors stood agog.

          It is a shame more patients are not better educated as well.

          But Guidant should be ashamed of themselves. I will never purchase a Guidant product, ever, and will be recommending Medtronic to anyone who asks me.

          Comment


          • #6
            Oh yes.....

            I have encountered numerous doctors who have no clue about HOCM. One doctor in my local ER tried to tell me that most HOCM patients usually end up dying. I put him straight immediately, saying that, in fact, only a small minority of people with HOCM or HCM, end up dying from the disease. He said that "if this happened 10 years ago you would be dead by now" Outrageous!

            Just thought I'd get that off my chest!

            Take care all,

            Paul
            Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.

            Comment


            • #7
              That is awful. Why are doctors so stupid about their bedside manner?

              And even ten years ago, at least in the US, we had ICDs and cardioversion. and myectomy. jeez. What a dolt.

              S

              Comment

              Today's Birthdays

              Collapse

              Working...
              X