Greetings Everyone!
Hope this message finds everyone doing well!
A very close friend just found out that their 2 year old nephew is having some heart health issues, and has asked for some assistance ...
He has not been diagnosed with HCM, nor has HCM even been hinted, so I hope I am not out of line or inappropriately posting this question ~ if I am out of line, please accept my apologies!
The situation:
The little boy had RSV when he was a baby ... he since has been diagnosed with asthma (has an enhaler and uses an nebulizer) ~ please forgive my spelling too ...
Recently, the doctor's told the parent's that he had a murmer ~ that they believed was due to a hole in his heart ...
After testing, they realized he did not have a whole in his heart, but instead that the membranes in his heart were growing in an unusual fashion, and this was affecting the valve in the heart, that the membranes are interfering with the blood flow - and the blood is even flowing backwards at times to this interference ...
This was "labeled" they did give a name for it, but I can't quiet remember ...
My friend is trying to encourage the family to get a second opinion ~ as the doctor wants to do open heart surgery to remove the extra membranes ...
One of the difficulties is trying to find a cardiologist to refer to the family ... and possibly insurance issues if they leave the state for the second opinion (we aren't sure if this is a problem?) ...
Does anyone know of cardiologist - maybe even a pediatric cardiologist that they could refer?
Thanks for any assistance ~ and prayers are greatly appreciated!!!
Hope this message finds everyone doing well!
A very close friend just found out that their 2 year old nephew is having some heart health issues, and has asked for some assistance ...
He has not been diagnosed with HCM, nor has HCM even been hinted, so I hope I am not out of line or inappropriately posting this question ~ if I am out of line, please accept my apologies!
The situation:
The little boy had RSV when he was a baby ... he since has been diagnosed with asthma (has an enhaler and uses an nebulizer) ~ please forgive my spelling too ...
Recently, the doctor's told the parent's that he had a murmer ~ that they believed was due to a hole in his heart ...
After testing, they realized he did not have a whole in his heart, but instead that the membranes in his heart were growing in an unusual fashion, and this was affecting the valve in the heart, that the membranes are interfering with the blood flow - and the blood is even flowing backwards at times to this interference ...
This was "labeled" they did give a name for it, but I can't quiet remember ...
My friend is trying to encourage the family to get a second opinion ~ as the doctor wants to do open heart surgery to remove the extra membranes ...
One of the difficulties is trying to find a cardiologist to refer to the family ... and possibly insurance issues if they leave the state for the second opinion (we aren't sure if this is a problem?) ...
Does anyone know of cardiologist - maybe even a pediatric cardiologist that they could refer?
Thanks for any assistance ~ and prayers are greatly appreciated!!!
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