Hello everyone. Well I sent in my registration form today for my mom and I to attend the meeting. I have wanted to go to this event for years now and I just wanted to say I am excited to go and meet Lisa and others. Thanks for everyone's support. I will have to go to a status 7 for that weekend on the transplant list. But I am looking forward to the meeting.
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Looking forward to seeing and meeting people at HCMA
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Cant wait to meet you all!
It is coming soon!
LisaKnowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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I'm sorry I won't be able to make it this year. I'm sure those of you who go will have a great time! There is too much going on with my mom being sick for me to make a trip to NJ this year. Maybe next year.
ReenieReenie
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Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
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Who else is attending the meeting? I am planning to be there, and am interested to know who I will be hanging out with since I am going to be leaving my husband and son behind.......Daughter of Father with HCM
Diagnosed with HCM 1999.
Full term pregnancy - Son born 11/01
ICD implanted 2/03; generator replaced 2/2005 and 2/2012
Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.
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