If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Holter test

Collapse

About the Author

Collapse

Gary Jackson Find out more about Gary Jackson
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • progers
    replied
    Thanks for the messages Sarah and Reenie. I am all too aware that most cardilogists know little about HCM. There are a couple of excellent HCM specialists in Australia, whom I have seen, but the problem is they live in Sydney (a 1 hour flight away), so it is not really practical to have one of them as my regular cardiologist.

    The only person I trust is my surgeon - Peter Skillington - who did my myectomy. He has a very good understanding of HCM/HOCM. He is SO attentive to his patients and I was very lucky to have found him. It seems as though everyone in Melbourne knows him and respects him. The problem is that he is a surgeon and cannot act as my cardilogist!

    Cheers,

    Paul

    Leave a comment:


  • Reenie
    replied
    I agree, ask for a 30 day monitor. Hopefully that will catch one of these yucky arrhythmias.

    Reenie

    Leave a comment:


  • Sarah
    replied
    Vtach

    Well, you can be pretty certain you aren't having ventricular fibrillation because once you go into vfib, eMedicine. com says you only have a few minutes left (unless you are cardioverted).

    Vtach is a concern, obviously. Lisa always says a Holter is the best way to cure arrhythmias! Get a long term monitor and see what comes up.

    I also think you should get to a specialist. Having a HOCM patient doesn't make you a specialist. It makes you a doctor with special patients.

    take care and good luck.

    Leave a comment:


  • progers
    replied
    I have been having one or two arrhythmias each day since my surgery which make me real light headed like I'm going to pass out. So, my cardiologist organised a 24 hour holter yesterday. I went down to the hospital and while I was in the waiting room, I had a real nasty one. I should have already had the holter on by then but they were running late (OF COURSE!!!!!!!!!!) and so I didn't have the holter on to pick it up!

    Needless to say, while I was wearing the holter I did not have any of the nasty arrhythmias which have been causing concern (other than the odd PVC and ectopic - I can tell when these happen) . So, the whole thing was a waste of time and I know that I will need to get another one done again. It sucks, because I am really concerned about a particular type of arrhythmia that I have been getting, but there is no record of it and no way to know if it is V-tach or V-fib (i.e. the type of arrhythmias that can kill you!).

    I have been told that I should probably get an ICD, but my local cardiologist seems to think they are a last resort. She is not a HOCM specialist, but does have HOCM patients.

    Cheers.

    Paul

    Leave a comment:


  • Lisa Salberg
    replied
    Some people feel "palpitations" and that is one clue, others feel lightheaded, some feel "racing". A holtor is a good idea at least annually for most people with HCM. If you really think you are having some abnormal rythm, and the holtor is clear, get a loop monitor for 30 days to try to catch it.

    Lisa

    Leave a comment:


  • Gary Jackson
    replied
    Lisa

    thank you but how would I know if i ahve arrthmyia probelms if it ddint show up on holter?

    Leave a comment:


  • Lisa Salberg
    replied
    Actually - NO - it means that you did not have any arrythmias while the holtor was on. You may have arrythmias at other times. This is why it is important to repeat holtors on a regular basis - at least annually. If you think you may have any rythm problems and the holtor did not pick it up you can get a loop monitor for 30 + days.

    Take care,
    Lisa

    Leave a comment:


  • scottonbike
    replied
    For me, I will be in arrhythmia sitting in the doctors office. I get in to see the doctor after having my heart go pitter patter for 4 days and I no longer be arrhythmic. I wear a holter/event monitor for 1 week, no arrhythmia, shortness of breath or any other hcm symptoms. I think I need to wear one all the time.

    Scott

    Leave a comment:


  • Reenie
    replied
    Not everyone with HCM has arrhythmia, but many do. There are many treatments for arrhythmias, medication being one, but it doesn't have to be a beta blocker. There are also surgical procedures that can reduce arrhythmias, ICD's, or other means of reducing them. I hope someone else can give you a little more information.

    Reenie

    Leave a comment:


  • Gary Jackson
    replied
    does anyone know if arrymyias are common with HCM? is one put on a beta blocker if there arent arrymyias present?


    thank u

    Leave a comment:


  • Reenie
    replied
    Yes, it means the Holter didn't catch any arrhythmias.

    Reenie

    Leave a comment:


  • Gary Jackson
    started a topic Holter test

    Holter test

    does a normal holter test mean there is no arthymias?

    thank you

    Gary

Today's Birthdays

Collapse

There are no members with birthdays today.

Working...
X