If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

is being lightheaded a normal symptom


About the Author


bkoster Find out more about bkoster
  • Filter
  • Time
  • Show
Clear All
new posts

  • is being lightheaded a normal symptom

    My 9 year old son - soon to be 10 next week told me last night that he was light headed. He said his head felt like it was empty and that he felt like he was in a movie. It was after church last night, he was playing around with the kids in his room, but nothing really physical like running.
    I am so worried about him. He is on atenolol. He wore a 24 hour holter monitor a month ago and everything was fine. he wears one of these once a year. He said he has only had this one other time.
    I'm really worried about him. Is this just a normal thing he will have?
    His septal measurement is around 21-26 mm.

  • #2

    Hi Barbara

    I get lightheaded almost every time i stand up lately, I think it is to do with the medications giving you lower blood pressure ?. I am sure someone else in here will know more details

    take care



    • #3
      Hi Barbara.

      My dauighter complained of lightheadedness and fatigue in a way that really had us worried. She had not yet been diagnosed. We took her for a screening and a cardio workup. They said she was perfectly normal, but perhaps was suffering from not drinking enough. So we started making sure she got enough to drink each day and the symptoms disappeard.

      That being said, lightheadedness is one symptom almost every one of us has experienced. I would take it seriously.


      God Squad co-moderator
      Nothing is as gentle as strength and nothing is as strong as gentleness


      • #4
        Barbara, Please call the HCMA office and have a chat with Lisa. She will be able to help you work thru info for both you and your son. Best wishes, please keep us posted, Linda

        HCMA office - 973-983-7429


        • #5
          Fist of all - How are YOU? It has been a while since we chatted.

          Yes, lightheadedness happens to many with HCM. I would discuss this symptoms with your sons doctor sooner then later. It may be nothing and it may be something. (dont you like how specific that was ).

          Take care,
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)